an insight into my life with severe asthma, advocacy, awareness & research
Just now I feel like a swan in a pond. Everything looks ok on the outside but under the water it can be furiously paddling to stay a float. In January 2022 when I developed the urachal cyst never did I envision what has unfolded let alone still be battling 14 months later. I am… Continue reading Floundering a little
It is a very sad state of affairs when nurses are being pushed to their limit, having given their all to save lives and are not rewarded for their dedication especially after the few years where many chose to sacrifice being with the family to protect them while they went off to look after those… Continue reading Nursing Strikes
I am really proud to have become a Cochrane Consumer Champion. Without sounding cliche I never imagined "my journey" in patient and public involvement (PPI) with the Asthma UK Centre for Applied Research would take me to where I am now. What started as reviewing a few patient information sheets has led to being a… Continue reading Cochrane Consumer Champion
"the uniform I love is the uniform that saves me and is killing me" has been a statement I have written many times over the years. I posted on social media a few weeks ago now to say that I would not be coming back to my job as a community dialysis nurse. I would… Continue reading Another chapter ending in my life
I am not actually sure what title to give this post. I was recently in a consultation type meeting with a range of service users to discuss the nursing program at one of the universities in Edinburgh. They are being revalidated and want to make sure that the course is producing the best possible nurses… Continue reading Getting medication on time.
With the new year fast approaching I like to reflect back on how the year has been and what I have achieved. Last years post can be found here . My thought for 2019 was: 2019 is going to be a great year, a year to focus on achieving the best health I can and enjoy… Continue reading 2019 the good, the bad & the ugly
Recently I shared a link to a story my brother wrote. It was about me living my life with severe asthma. He is a journalist with the Daily Record and is doing some pieces on asthma, smoking on hospital sites (one of my hobby horses) and some other things. (I apparently don't have many photos… Continue reading Why does a journalist want to do a feature on his sister with asthma??
The birthday of Florence Nightingale it is only natural that this is also international nurses day given she was the founder of modern nursing as we know it. When I left school I was the last person anyone would have thought would be a nurse. All I did was sport, all I talked about was… Continue reading International Nurses Day
I really can't believe its been a week since I got back to the UK and Healthevoices is over. I still can't put into words how I feel about it. It was nothing I could ever imagine and really can't put it in words. It was truly fantastic. Before I settle to write about the… Continue reading Just use appropriate pictures!!!
This past week has been really tough. Asthma is one of those conditions that is on a spectrum. Going from those with the mildest of asthma to those with the most severe and life threatening asthma you get everyone across the board and you can not pick out the one person with mild and the… Continue reading It’s ok to not be ok.
ANONYMOUS-ASTHMA 