an insight into my life with severe asthma, advocacy, awareness & research
Last month saw the rebranding of the Asthma UK and British Lung Foundation Partnership. It has been rebranded and is now Asthma + Lung UK. Evolution is sometimes scary and can be uncertain but there is often so many positive things that come from it, my perspective is that this has continually happened in the… Continue reading Experiencing the evolution of an asthma charity in the UK
The following blog post was shared on the Asthma UK Centre for Applied Research website. I was so privileged to speak at the Lung Health Cross Party Group meeting at the Scottish Parliament. I spoke about digital health and how I have integrated smart technology in my life. "Following her presentation to the Scottish Parliament… Continue reading Discussing smart technology for asthma self-management at the Lung Health Cross Party Group at the Scottish Parliament
Asthma UK- Asthma Health Technology Fund You may have seen on either the Asthma UK British Lung Foundation website or LinkedIn that there has been the launch of a multi million pound fund available to support the development of asthma health technologies. This fund I believe is so important because asthma lags behind other long… Continue reading Multi-million pound Asthma Health Technology Fund at Asthma UK
Made my TV debut!! Last week I was asked by the British Lung Foundation if I would be willing to be interviewed for Reporting Scotland. The interview all hinged on Nicola Sturgeon announcing changes to shielding on the Thursday (23rd July 2020). If things went Pete Tong in Scotland she would not be making any… Continue reading Reporting Scotland: Shielding Changes
Back on 10th December the news hit the headlines that Asthma UK are to merge with the British Lung Foundation (BLF). It was met online with mixed reviews particularly by fellow asthmatics. I think there was a concern that asthma as a condition might get lost because the BLF covers such a wide range of… Continue reading The Asthma UK and British Lung Foundation Partnership
With the new year fast approaching I like to reflect back on how the year has been and what I have achieved. Last years post can be found here . My thought for 2019 was: 2019 is going to be a great year, a year to focus on achieving the best health I can and enjoy… Continue reading 2019 the good, the bad & the ugly
Recently I shared a link to a story my brother wrote. It was about me living my life with severe asthma. He is a journalist with the Daily Record and is doing some pieces on asthma, smoking on hospital sites (one of my hobby horses) and some other things. (I apparently don't have many photos… Continue reading Why does a journalist want to do a feature on his sister with asthma??
I was asked to write this blog post by Asthma UK as their report about severe and difficult asthma has just been published and the statistics are shocking. Asthma is not taken seriously or respected, some people don't take their medication as they are meant to for a variety of reasons but this can be… Continue reading Severe asthma- family and friends misconceptions.
Having a conversation with a friend this evening and I was so shocked to hear about her recent experience being diagnosed with asthma. A prolonged cough, wheezing and breathlessness the GP was unable to get on top of things so she was referred on to the hospital to see what was going on. Lung function… Continue reading Getting it right for a newly diagnosed asthmatic.
On the 29th February there was an awareness day for rare diseases. Asthma is one of the most common rare diseases out there. Its rare in its own very special way. It is not in the same category as some of the obscure disease like EB or Battens which are rare due to so few… Continue reading Asthma a rare disease??
ANONYMOUS-ASTHMA 