Tag: asthma advocate

Cochrane Consumer Champion

justTUX

I am really proud to have become a Cochrane Consumer Champion. Without sounding cliche I never imagined "my journey" in patient and public involvement (PPI) with the Asthma UK Centre for Applied Research would take me to where I am now. What started as reviewing a few patient information sheets has led to being a… Continue reading Cochrane Consumer Champion

Long COVID vs Post ICU Syndrome

justTUX

Is Long Covid really a new condition? Or just a new name for a syndrome that has effected the thousands of ICU Survivors for years? Taken from Long Covid Website There is a huge amount in the press just now about a new condition that is developing as a result of COVID19. Long COVID seems… Continue reading Long COVID vs Post ICU Syndrome

Too many ideas….dont know where too start

justTUX

Right now I have so many blog ideas but I have no idea which one to start with and how to get them all done. I sit down to write one and I get an idea for another or a note I need to write down for another blog I have started and want to… Continue reading Too many ideas….dont know where too start

My HealtheVoices19 experience!

justTUX

Last night I was catching up on reading some blogs and came across one that was written by one of the other people who attended HealtheVoices (HeV) who opened her blog post with my exact thoughts. She had been drafting and redrafting posts about her experiences of HealtheVoices and not knowing quite how to write… Continue reading My HealtheVoices19 experience!

To my new family and my tribe #HealtheVoices19

justTUX

Wow where do I start. It takes a lot for me to be left speechless but I am unable to put into words the emotion and feelings from this past weekend. It sounds a bit cringe to say but it has been truly life changing. I have made so many new friends who I know… Continue reading To my new family and my tribe #HealtheVoices19