but the publishing of my story in The Lancet Respiratory Medicine left a really bad taste in my mouth. The article was published back on the 7th July but I didnt know this. I didnt know until yesterday that it was live. I didnt find out it was live because The Lancet got in touch… Continue reading My Story living with severe asthma
The following blog post was shared on the Asthma UK Centre for Applied Research website. I was so privileged to speak at the Lung Health Cross Party Group meeting at the Scottish Parliament. I spoke about digital health and how I have integrated smart technology in my life. "Following her presentation to the Scottish Parliament… Continue reading Discussing smart technology for asthma self-management at the Lung Health Cross Party Group at the Scottish Parliament
Patient advocates seem to give off this impression of being fearless, great speakers and always knowing the right thing to say. I often looked patient advocates and admired their confidence and strength for the work they do. I still do. It has only been in the last few years that I have really identified as… Continue reading Worries of being a patient advocate
I am really proud to have become a Cochrane Consumer Champion. Without sounding cliche I never imagined "my journey" in patient and public involvement (PPI) with the Asthma UK Centre for Applied Research would take me to where I am now. What started as reviewing a few patient information sheets has led to being a… Continue reading Cochrane Consumer Champion
Is Long Covid really a new condition? Or just a new name for a syndrome that has effected the thousands of ICU Survivors for years? Taken from Long Covid Website There is a huge amount in the press just now about a new condition that is developing as a result of COVID19. Long COVID seems… Continue reading Long COVID vs Post ICU Syndrome
Right now I have so many blog ideas but I have no idea which one to start with and how to get them all done. I sit down to write one and I get an idea for another or a note I need to write down for another blog I have started and want to… Continue reading Too many ideas….dont know where too start
I am really excited to share with everyone my new logo and branding. I have never thought about branding myself for my involvement and advocacy work but while at HealtheVoices19 it became very clear that this was something I needed to do to become as effective as I could be. It was my chance that… Continue reading Branding!!!!
Last night I was catching up on reading some blogs and came across one that was written by one of the other people who attended HealtheVoices (HeV) who opened her blog post with my exact thoughts. She had been drafting and redrafting posts about her experiences of HealtheVoices and not knowing quite how to write… Continue reading My HealtheVoices19 experience!
Wow where do I start. It takes a lot for me to be left speechless but I am unable to put into words the emotion and feelings from this past weekend. It sounds a bit cringe to say but it has been truly life changing. I have made so many new friends who I know… Continue reading To my new family and my tribe #HealtheVoices19