an insight into my life with severe asthma, advocacy, awareness & research
With severe asthma or actually any type of asthma or chronic health condition one of the biggest parts of living with it is self management. We are (hopefully) taught how to manage living with our condition, take action when things don't go quite right. We are pretty much left to our own devices. Day to… Continue reading Self Management- how does it feel when you can’t.
For those who follow me on social media will be aware that I recently had to be admitted to hospital for emergency abdominal surgery. Of course I was shocked at the prospect of needing surgery and the speed at which everything happened but looking back on it I realised I have totally normalised going into… Continue reading Emergency Surgery and Normalising Hospital Admissions
On my social media I have recently been posting about the fear and anxiety I have been trying to deal with. I have discovered that I am not the only one who is having the same experience. This is reassuring as it says to me that my fear is justified but it is awful that… Continue reading Living with fear and anxiety
World Delirium Day- 17th March 2021 Delirium is a serious disturbance in mental abilities that results in confused thinking and reduced awareness of the environment. Delirium is rarely spoken about. Many people can feel ashamed because of the delirium they experienced due to the memories they have. There is often the perception that if you are… Continue reading ‘Forgetting difficult hospital admissions but then being haunted by memories and not being able to put them together and make sense of them all’
Yes Dr, I will take that as you prescribe despite the horrible side effects stopping me living my life. How often have you found yourself doing this? Do you know that you can speak up and disagree with your Dr or healthcare provider. In the UK when it comes to healthcare traditionally we are not… Continue reading You can disagree with your Dr, its called self advocating.
Finally I am able to sit down without getting upset or terrifying myself about my latest hospital admission specifically experience in ICU. The photo below may not look like much and you may think its a window and building but this is what has caused me to much trauma. Before anyone reads on please note… Continue reading Trauma of ICU
On Tuesday 1st May is was World Asthma Day. I normally do something during the day, or post a video etc raising awareness about asthma, how serious it is, how critically under funded research into asthma is. This year however I didnt do anything I just wasn't well enough, my chest was far from good… Continue reading World Asthma Day
This past week the UK has been hit with some awful weather. In the whole scheme of things around the world the weather was not too bad compared to the likes of Canada but the snow fall was enough to bring the transport system to its knees, shops ran out of food, no milk could… Continue reading Snow week: lessons learnt
I have been back at work now on a phased return and it is going fairly well except for one part. When my chest feels tight I do find it a bit of a struggle to get from the car park to the hospital. The staff car park is the furthest out from the hospital… Continue reading Returning to work in a fog of smoke.
One of my previous posts I titled as the most terrifying experience. At the time I thought it was, but sadly it was not and last week it went to a whole new level of scariness. I had not been discharged long but I needed up needing to go back to hospital. It all started… Continue reading No wonder asthmatics don’t go to hospital early!
ANONYMOUS-ASTHMA 