After years of struggling with what I thought was only allergies I was formally diagnosed with spontaneous idiopathic urticaria and angioedema (I will refer to it as urticaria from here as it is a mouthful and a lot to write over and over). I wrote a blog post about it a few months ago, it… Continue reading Being on Biologics for Spontaneous Idiopathic Urticaria and Angioedema
Clinicians showing vulnerability and learning from patients is so refreshing. This is my recent experience which I wanted to share as I hope it will allow patients to understand clinicians but also hope that any clinicians reading this will understand what is important to us as patients. My involvement in the Severe Heterogenous Asthma Research… Continue reading Patient Aims vs Clinician Aims when managing long term conditions
Corona virus, COVID-19 or as I like to refer to it as "the virus" is the hot topic just now and rightly so especially as the World Health Organisation has just declared it to be a pandemic. I have not posted anything on facebook, instagram, twitter or my blog about the virus because everywhere is… Continue reading Corona Virus what does it mean for severe asthma?
In my last blog post I mentioned how I met some other people with severe asthma at a BLF-AUK event where we had a conversation about asthma and severe asthma. It may have the same mechanisms in that it is a condition where the airways become inflamed and irritated causing difficulty breathing but here ends… Continue reading Is severe asthma different to asthma?
I was asked to write this blog post by Asthma UK as their report about severe and difficult asthma has just been published and the statistics are shocking. Asthma is not taken seriously or respected, some people don't take their medication as they are meant to for a variety of reasons but this can be… Continue reading Severe asthma- family and friends misconceptions.
I can't believe it is a year since I started on mepolizumab (mepo) a monoclonal anti body treatment to suppress my eosinophils in a bid to help my asthma. The big question is as it helped? I am not sure. My consultant seems to think it has and I am to continue on it. My… Continue reading A year on monoclonal antibody treatment
Finally I am able to sit down without getting upset or terrifying myself about my latest hospital admission specifically experience in ICU. The photo below may not look like much and you may think its a window and building but this is what has caused me to much trauma. Before anyone reads on please note… Continue reading Trauma of ICU
I have been fairly quiet recently mainly because I was terrified. I have had 3 doses of Mepolizumab and was due to attend clinic and see my consultant for the verdict and find out if I am staying on it or not. The good news is that I am staying on it for now. Clinic… Continue reading The Verdict!!
I haven't written in ages and I apologise for that but I really did not know what to write and how to write without getting myself angry and upset as I feel the last 8 years have just been a total waste. I wrote a while back about changing consultant and hospital because I was… Continue reading New drugs, new start?
In March/April for me my asthma care hit a wall and I could no longer continue as I was. Despite my consultant being one of the best in the field of difficult to control asthma I was getting no where, I was feeling lost, totally out of control and no idea what I was doing… Continue reading New horizons- not knowing how to feel!