In my last blog post I mentioned how I met some other people with severe asthma at a BLF-AUK event where we had a conversation about asthma and severe asthma. It may have the same mechanisms in that it is a condition where the airways become inflamed and irritated causing difficulty breathing but here ends… Continue reading Is severe asthma different to asthma?
or at least we think it is. Otherwise it is just my body being weirder then it already is. After over a decade of being on oral steroids I thought I had come across most of the side effects. I have not experienced all of them but have heard of them or at least I… Continue reading One of the more unusual side effects of prednisilone
Getting a cold to many is an inconvenience. To a severe asthmatic getting a cold fills you with dread because generally our lungs are fantastic hosts to cold bugs leaving us with rip roaring chest infections. During the winter months you cant avoid the common cold, well you could but that would mean you become… Continue reading Cold to chest infection to….
Under a month ago I was writing about how I had been a year on mepolizumab. The drug that I thought was going to be my wonder drug and make my asthma easy to control or so I thought. You can read the post here. Part of me wonders did I know deep down that… Continue reading We need to stop Mepolizumab
Many on long term oral prednisolone will be familiar with the saying that it is the gift that keeps on giving. It is the one medication that gives those who are taking it life but also results in many secondary conditions resulting due to the side effects and the prolonged side effects. I have written… Continue reading The gift that keeps on giving!!
I have written a lot about my allergies and how the affect me. Being allergic to salicylic acid is a nightmare. It is in everything from fruit and veg to toothpaste. I have been salicylate free for a good 10 or so years now. On days where my asthma is not too bad I can… Continue reading Coping with allergic reactions
Oral steroids like prednisolone come with a vast array of side effects. Some of these side effects can be very visible such as weight gain, or thinning skin but these are not the side effects to be worried about. It is the silent side effects that we don't see that need to most attention and… Continue reading Oral Steroids and Bone Health
Since my attack at the end of November/ December I have really struggled mentally and physically. The initial recovery was good, my lung function returned to my normal fairly quickly and my energy stores were up, I was able to get about and get on with my daily routine without much limitation. Reducing steroids was… Continue reading The uniform that saves me, is it drowning me at the same time?
This past week has been really tough. Asthma is one of those conditions that is on a spectrum. Going from those with the mildest of asthma to those with the most severe and life threatening asthma you get everyone across the board and you can not pick out the one person with mild and the… Continue reading It’s ok to not be ok.
I have been fairly quiet recently mainly because I was terrified. I have had 3 doses of Mepolizumab and was due to attend clinic and see my consultant for the verdict and find out if I am staying on it or not. The good news is that I am staying on it for now. Clinic… Continue reading The Verdict!!