How do you get from Fearnan to Perth in 30 minutes and Perth to Dundee in 15 minutes. A blue lighted ambulance!! (This might be a bit of a long one but I need to get it down on paper so to speak) With severe asthma you think you have experienced everything when it comes… Continue reading Experiencing a new hospital!
Corona virus, COVID-19 or as I like to refer to it as "the virus" is the hot topic just now and rightly so especially as the World Health Organisation has just declared it to be a pandemic. I have not posted anything on facebook, instagram, twitter or my blog about the virus because everywhere is… Continue reading Corona Virus what does it mean for severe asthma?
In my last blog post I mentioned how I met some other people with severe asthma at a BLF-AUK event where we had a conversation about asthma and severe asthma. It may have the same mechanisms in that it is a condition where the airways become inflamed and irritated causing difficulty breathing but here ends… Continue reading Is severe asthma different to asthma?
and how does it differ around the world?? Last April I was in Dallas Texas attending the HealthEvoices (HeV) meeting. A meeting for health advocates to meet and learn from each other. I went out there thinking I knew what health advocacy was but I was wrong to some extent. A while back I put… Continue reading Being a Health Advocate
I was asked to write this blog post by Asthma UK as their report about severe and difficult asthma has just been published and the statistics are shocking. Asthma is not taken seriously or respected, some people don't take their medication as they are meant to for a variety of reasons but this can be… Continue reading Severe asthma- family and friends misconceptions.
I can't believe it is a year since I started on mepolizumab (mepo) a monoclonal anti body treatment to suppress my eosinophils in a bid to help my asthma. The big question is as it helped? I am not sure. My consultant seems to think it has and I am to continue on it. My… Continue reading A year on monoclonal antibody treatment
I really can't believe its been a week since I got back to the UK and Healthevoices is over. I still can't put into words how I feel about it. It was nothing I could ever imagine and really can't put it in words. It was truly fantastic. Before I settle to write about the… Continue reading Just use appropriate pictures!!!
Having had asthma basically all my life one thing I have come to realise is the importance of your relationship with your GP or asthma nurse. For many they are the front line for you and your asthma care. I am so fortunate to have a GP who is really understanding and although she finds… Continue reading Having the support of your GP or Asthma Nurse
This past week has been really tough. Asthma is one of those conditions that is on a spectrum. Going from those with the mildest of asthma to those with the most severe and life threatening asthma you get everyone across the board and you can not pick out the one person with mild and the… Continue reading It’s ok to not be ok.
I have been fairly quiet recently mainly because I was terrified. I have had 3 doses of Mepolizumab and was due to attend clinic and see my consultant for the verdict and find out if I am staying on it or not. The good news is that I am staying on it for now. Clinic… Continue reading The Verdict!!