an insight into my life with severe asthma, advocacy, awareness & research
"There is no reason for your wound not to heal or keep getting infections. You must know something more about it that you are not telling us.....we will not offer you any further intervention with your wound" These were the words I heard from a Dr in April last year on the 21st to be… Continue reading Psychological impact of medical gaslighting a year on
Just now I feel like a swan in a pond. Everything looks ok on the outside but under the water it can be furiously paddling to stay a float. In January 2022 when I developed the urachal cyst never did I envision what has unfolded let alone still be battling 14 months later. I am… Continue reading Floundering a little
Medical gaslighting is a term that I have seen around on social media quite a bit over the last year or so. I would read stories about patients experiences of poor medical care or incorrect assumptions made by medics which have been devastating for the patient and feel blessed that this has never happened to… Continue reading Medical Gaslighting
No one likes pain and I mean physical pain. We do what we can to limit ourselves from getting pain or alleviate the pain we feel. A pain word cloud with some of the terms I would use to describe my life with chronic pain (taken from google) I have lived with chronic pain related… Continue reading Pain Management Appointment
I love speaking to medical students and student nurses. Even before I was a nurse I knew the importance of helping educate all the students wanting to go into the healthcare profession. Today I was interviewed by a couple of first year medical students. It was great to speak to them but I felt so… Continue reading Importance of helping the next generation of Drs and Nurses
Yes Dr, I will take that as you prescribe despite the horrible side effects stopping me living my life. How often have you found yourself doing this? Do you know that you can speak up and disagree with your Dr or healthcare provider. In the UK when it comes to healthcare traditionally we are not… Continue reading You can disagree with your Dr, its called self advocating.
Ask for help. Living with a long term health condition comes with many challenges especially when it is a condition that comes with unpredictability and triggers out with your own control. The challenge of trying to live a normal life is tiring and it can feel like a full time job just trying to stay… Continue reading What do you do when it all gets a little too much?
Having had asthma basically all my life one thing I have come to realise is the importance of your relationship with your GP or asthma nurse. For many they are the front line for you and your asthma care. I am so fortunate to have a GP who is really understanding and although she finds… Continue reading Having the support of your GP or Asthma Nurse
Finally I am able to sit down without getting upset or terrifying myself about my latest hospital admission specifically experience in ICU. The photo below may not look like much and you may think its a window and building but this is what has caused me to much trauma. Before anyone reads on please note… Continue reading Trauma of ICU
Today 69 years ago the NHS was created. A vision of the government and Clement Attlee which would provide a unified health service available to all. The campaign and implementation was spearheaded by Nye Bevan who can be quoted saying: I really do owe everything to the NHS and it is scary to see how… Continue reading Happy Birthday NHS
ANONYMOUS-ASTHMA 