I have had a Key Information Summary (KIS) on my notes for a number of years and until today I have always taken it for granted. For me it is something that has always been and I just assumed that it was something that everyone with a chronic health condition had. Today at an Asthma… Continue reading Key Information Summary for those chronic health
No one likes pain and I mean physical pain. We do what we can to limit ourselves from getting pain or alleviate the pain we feel. A pain word cloud with some of the terms I would use to describe my life with chronic pain (taken from google) I have lived with chronic pain related… Continue reading Pain Management Appointment
When I woke from the coma and not being able to feel my leg never did I think that a year on there would be no improvement. To be honest I don't think the medics thought it was anything more than temporary too. Over the year I have experienced a lot of different emotions and… Continue reading A year on from that fateful day.
Corona virus, COVID-19 or as I like to refer to it as "the virus" is the hot topic just now and rightly so especially as the World Health Organisation has just declared it to be a pandemic. I have not posted anything on facebook, instagram, twitter or my blog about the virus because everywhere is… Continue reading Corona Virus what does it mean for severe asthma?
In my last blog post I mentioned how I met some other people with severe asthma at a BLF-AUK event where we had a conversation about asthma and severe asthma. It may have the same mechanisms in that it is a condition where the airways become inflamed and irritated causing difficulty breathing but here ends… Continue reading Is severe asthma different to asthma?
I was recently at the first event since the partnership of Asthma UK and the British Lung Foundation. It was fantastic to see BLF colleagues with the Asthma UK logo on their name badges alongside the BLF logo. Also being welcomed with open arms too was lovely. I was a bit daunted to attend this… Continue reading BLF-AUK Respiratory Action Plan Meeting
and how does it differ around the world?? Last April I was in Dallas Texas attending the HealthEvoices (HeV) meeting. A meeting for health advocates to meet and learn from each other. I went out there thinking I knew what health advocacy was but I was wrong to some extent. A while back I put… Continue reading Being a Health Advocate
Ask for help. Living with a long term health condition comes with many challenges especially when it is a condition that comes with unpredictability and triggers out with your own control. The challenge of trying to live a normal life is tiring and it can feel like a full time job just trying to stay… Continue reading What do you do when it all gets a little too much?
I was asked to write this blog post by Asthma UK as their report about severe and difficult asthma has just been published and the statistics are shocking. Asthma is not taken seriously or respected, some people don't take their medication as they are meant to for a variety of reasons but this can be… Continue reading Severe asthma- family and friends misconceptions.
I really can't believe its been a week since I got back to the UK and Healthevoices is over. I still can't put into words how I feel about it. It was nothing I could ever imagine and really can't put it in words. It was truly fantastic. Before I settle to write about the… Continue reading Just use appropriate pictures!!!