I was recently at the first event since the partnership of Asthma UK and the British Lung Foundation. It was fantastic to see BLF colleagues with the Asthma UK logo on their name badges alongside the BLF logo. Also being welcomed with open arms too was lovely. I was a bit daunted to attend this… Continue reading BLF-AUK Respiratory Action Plan Meeting
2019 the good, the bad & the ugly
With the new year fast approaching I like to reflect back on how the year has been and what I have achieved. Last years post can be found here . My thought for 2019 was: 2019 is going to be a great year, a year to focus on achieving the best health I can and enjoy… Continue reading 2019 the good, the bad & the ugly
The last few days I have been down in Manchester at the Annual Scientific Meeting for the Asthma UK Centre for Applied Research. It was a great few days. all kicked off by an entertaining dinner with the centre director and post grad and network co-ordinator who learnt the value of Twitter and what you… Continue reading #aukcarASM15
A mutual understanding with Asthma UK
A while ago I posted about how angry and disgruntled I was with Asthma UK. They had taken the decision to close their offices in Scotland, Wales and Northern Ireland. To say I went off the deep end would be a small under statement. I felt hurt as it was the Asthma UK Scotland office… Continue reading A mutual understanding with Asthma UK
Patient and Public Involvement aka PPI
Our Patient and Public Involvement (PPI) Forum lead gave a short course on what PPI is and how to use it in research as well as the benefits of using PPI which is often a forgotten entity in the research process. I was observing this course and chipping in periodically along with one of the… Continue reading Patient and Public Involvement aka PPI
The isolation of chronic illness
Someone I follow on Instagram summed up exactly how I feel my asthma has made me. I used to be almost the opposite of myself. I always want to think that chronic illness does not define who I am but then this is not true at all. I am my chronic illness and I have… Continue reading The isolation of chronic illness
Guest Blog from a great friend Dr Steph!!
This guest blog is from Steph. I met Steph originally on Asthma UK's online forum. We didn't know who each other were. I was Olive86 and Steph was disco dolly or DD for short if I remember correctly!!! We chatted through the forum for a few years and then with the creation of Facebook we… Continue reading Guest Blog from a great friend Dr Steph!!
Friends lost and why change is needed so desperately
It is this time of year where we are so grateful for our families and friends. We can celebrate Christmas and see in the New Year surrounded by those we love and cherish. That being said it is also a time for many families to remember those who are not with them. Those who have… Continue reading Friends lost and why change is needed so desperately
Taking action- when, what and why??
When illness strikes it is never at a time that suits you. It can't be scheduled into your diary when you have a few days off. In fact quite the opposite- things normally happen when you have loads of stuff on and events you are looking forward to!! This is what is happening right now!!… Continue reading Taking action- when, what and why??
Guest Blog from fellow brittle asthmatic BeckyG
Continuing with my guest blogs Becky has very kindly agreed to write a wee bit about her experience with brittle asthma but also what she has done for Asthma UK as a result of it. I have known Becky for a number of years but have only met once and that was in the respiratory… Continue reading Guest Blog from fellow brittle asthmatic BeckyG