The short answer is NO and there needs to be a big changes for that to happen. I have actually written this blog post twice. The first incarnation was me getting my feelings off my chest but I decided not to post it as it would not be helpful to anyone. Instead I have decided… Continue reading Are patient co-authors an equal part in the research team?
I haven't written a blog post in quite a while now. I have started plenty but have not had the concentration to write a full post and have it in a state where it is ready to be posted. While I never proof read my posts I do like to make sure that there are… Continue reading Being honest about struggling with my health.
Surprisingly I never used to be vocal. 5 years ago I used to much rather sit in a room, listen and not participate. I felt like I had no right to contribute to the conversation because who was I. I was just a patient, a person who lived with a chronic health condition, but I… Continue reading Confidence in your own voice
2020 has been a really challenging year for everyone. After the initial worry of COVID-19 was over I then started to think about what I would do while we waited for the pandemic to be over. The government advised those classed as clinically extremely vulnerable to shield and protect ourselves from the virus. Shielding meant… Continue reading Doing PPI Virtually
From a young age we all have our dreams and aspirations as to what we want to be or do when we grow up. Our childhood dreams often don't quite equate to the reality of life. When we grow up you think that being Superman is just as much a possibility as being a Dr.… Continue reading Finding your other path in life.
I was recently at the first event since the partnership of Asthma UK and the British Lung Foundation. It was fantastic to see BLF colleagues with the Asthma UK logo on their name badges alongside the BLF logo. Also being welcomed with open arms too was lovely. I was a bit daunted to attend this… Continue reading BLF-AUK Respiratory Action Plan Meeting
I am really excited to share with everyone my new logo and branding. I have never thought about branding myself for my involvement and advocacy work but while at HealtheVoices19 it became very clear that this was something I needed to do to become as effective as I could be. It was my chance that… Continue reading Branding!!!!
For the past 5/6 years I have been given some fantastic opportunities and invited to be part of a number of very special events and a few events which are still to come. Yesterday was one of those events. Rewind 6 years and I would never even have thought I would be at ease public… Continue reading Patient Centricity
Tuesday evening I had a fantastic time. It was the first meeting for the Critical Care Patient and Public Involvement Group in Edinburgh. Patient and Public Involvement (PPI) in Scotland is no where near as organised as it is in England and funding is woeful, so to establish and run a group is a huge… Continue reading Critical Care does PPI
I have written often about being admitted to intensive care or the high dependancy unit or being reviewed by critical care staff and it always something I have just sort of dealt with and not thought to much more about it. That was until last night. I couldn't sleep for tossing and turning thinking about… Continue reading The Intensive Care Unit