The short answer is NO and there needs to be a big changes for that to happen. I have actually written this blog post twice. The first incarnation was me getting my feelings off my chest but I decided not to post it as it would not be helpful to anyone. Instead I have decided… Continue reading Are patient co-authors an equal part in the research team?
Surprisingly I never used to be vocal. 5 years ago I used to much rather sit in a room, listen and not participate. I felt like I had no right to contribute to the conversation because who was I. I was just a patient, a person who lived with a chronic health condition, but I… Continue reading Confidence in your own voice
The world is full of negativity just now due to the COVID-19 pandemic. It is naturally a scary time with uncertainty about what the future holds. We don't have the ability to plan going forward as no one knows when the restrictions we have in place will be lifted. Normally around this time of year… Continue reading Let’s Get Positive!!
2020 has been a really challenging year for everyone. After the initial worry of COVID-19 was over I then started to think about what I would do while we waited for the pandemic to be over. The government advised those classed as clinically extremely vulnerable to shield and protect ourselves from the virus. Shielding meant… Continue reading Doing PPI Virtually
From a young age we all have our dreams and aspirations as to what we want to be or do when we grow up. Our childhood dreams often don't quite equate to the reality of life. When we grow up you think that being Superman is just as much a possibility as being a Dr.… Continue reading Finding your other path in life.
Tuesday evening I had a fantastic time. It was the first meeting for the Critical Care Patient and Public Involvement Group in Edinburgh. Patient and Public Involvement (PPI) in Scotland is no where near as organised as it is in England and funding is woeful, so to establish and run a group is a huge… Continue reading Critical Care does PPI
I have written often about being admitted to intensive care or the high dependancy unit or being reviewed by critical care staff and it always something I have just sort of dealt with and not thought to much more about it. That was until last night. I couldn't sleep for tossing and turning thinking about… Continue reading The Intensive Care Unit
Our Patient and Public Involvement (PPI) Forum lead gave a short course on what PPI is and how to use it in research as well as the benefits of using PPI which is often a forgotten entity in the research process. I was observing this course and chipping in periodically along with one of the… Continue reading Patient and Public Involvement aka PPI