an insight into my life with severe asthma, advocacy, awareness & research
I haven't written a blog post in quite a while now. I have started plenty but have not had the concentration to write a full post and have it in a state where it is ready to be posted. While I never proof read my posts I do like to make sure that there are… Continue reading Being honest about struggling with my health.
Clinicians showing vulnerability and learning from patients is so refreshing. This is my recent experience which I wanted to share as I hope it will allow patients to understand clinicians but also hope that any clinicians reading this will understand what is important to us as patients. My involvement in the Severe Heterogenous Asthma Research… Continue reading Patient Aims vs Clinician Aims when managing long term conditions
Having a conversation with a friend this evening and I was so shocked to hear about her recent experience being diagnosed with asthma. A prolonged cough, wheezing and breathlessness the GP was unable to get on top of things so she was referred on to the hospital to see what was going on. Lung function… Continue reading Getting it right for a newly diagnosed asthmatic.
It has been a busy few weeks with a number of trips down to London. Last year when I had a few trips to London there was a clear deterioration in my asthma when I was there. My peak flow dropped substantially and I was constantly feeling tight, wheezy and just couldn't get my breath… Continue reading Getting over the stigma of wearing a mask in public!
Thats the second dose of mepolizumab done and dusted. Now to wait till next month for my next injection next month. So many people have been asking me how I feel and if the new drug is helping or making a difference, or ask me when I will start noticing the benefits. Its really hard… Continue reading 2nd dose of Mepolizumab in the bag
Reading the BBC news online I came across an article about cleaning products and lung health. A study carried out in Norway found that using a micro fibre cloth and water was suitable for most purposes rather than the products full of chemicals which advertise themselves as killing 99.9% of all bacteria etc. Cleaning particularly house… Continue reading Cleaning products and lung health
For any asthmatic or any person who needs to be seen in a clinic or Drs surgery they will more often than not be requested to do some kind of breathing test. In a GP setting this tends to be peak flow measuring your peak expiratory flow rate in litres per minute. Pretty much every… Continue reading Breathing tests every two weeks- every patients nightmare
Yesterday I saw my consultant in clinic. His secretary actually called in the morning to cancel it as Consultant wanted to have a joint appointment in a few weeks to finalise the emergency care plan that was being written should I end up in hospital. However recently I have not been really really unwell but… Continue reading Great Expectations
Continuing with the guest blogs this next one comes from Wendy. Wendy too suffers from more severe asthma aka Brittle asthma. I got to know Wendy I think initially through AUK perhaps and latterly on asthma groups. I think Wendy's blog was one of the first blogs I started reading many many years ago and… Continue reading Guest Blog from Wendy
Today I had my consultants appointment. It wasn't entirely productive in some aspects but pretty good in others. It started off with weigh in and i have lost weight again bringing my BMI down to 18 now. I have been trying hard to keep my weight up but have been trying to be quite healthy too and don't think I have got… Continue reading con appointment!!!
ANONYMOUS-ASTHMA 