Recently on social media I have become so aware that many with asthma do not have the essential tools they need to enable them to manage their asthma effectively and live a life where asthma does not impede their daily routine. 1. Personal Asthma Action Plan (PAAP) or action plan for short. This is essential… Continue reading Essentials for Good Asthma Management
I have written before about the positives of having telephone clinic appointments but today I found the real downside. I was meant to have a clinic appointment last week but this was rearranged due to my consultant being off work. It was rearranged for next Monday so I was shocked when I was called today.… Continue reading Negatives of telephone clinic appointments
Living with asthma for over 30 years I have experienced a lot of different medication, types (and colours) of inhaler and ways of managing my asthma. The types of inhaler have gone varied from a metered dose inhaler with a nebuhaler (similar to the volumetric but longer and thinner), to the spin haler and rotahaler… Continue reading Digital health and tele-monitoring.
I was asked to write this blog post by Asthma UK as their report about severe and difficult asthma has just been published and the statistics are shocking. Asthma is not taken seriously or respected, some people don't take their medication as they are meant to for a variety of reasons but this can be… Continue reading Severe asthma- family and friends misconceptions.
Once again asthma has been in the press for all the wrong reasons. Despite the National Review of Asthma Deaths (NRAD) in 2014 it appears nothing has got much better. It was announced that asthma deaths in England and Wales (Scotland was not mentioned) are at their highest in over a decade. Over the years… Continue reading No-one is immune from a near fatal asthma attack.
I can't believe it is a year since I started on mepolizumab (mepo) a monoclonal anti body treatment to suppress my eosinophils in a bid to help my asthma. The big question is as it helped? I am not sure. My consultant seems to think it has and I am to continue on it. My… Continue reading A year on monoclonal antibody treatment
How often do we read or hear that asthma is "just asthma" and an inhaler will fix it all. Everyone knows someone who has asthma but not everyone knows how bad asthma can be and that it kills people. 3 people die each day in the UK compared to the 10 across the United States.… Continue reading Are asthmatics who post on social media one reason why asthma is considered as “just asthma”?
It is well known that pollution makes asthma worse. There has been a lot of information in the press about this and how there needs to be low emission zones in major cities to try and increase the air quality. Recently an inquest ruled that the death of a young girl from asthma was due… Continue reading Pollution and its effect on my asthma
Today was a big day for many Scottish people living with severe asthma. Many of us live day to day taking medications that do not fully help relieve our asthma symptoms and keep our asthma under control. It can be very frustrating and scary to live day to day not knowing how you will be.… Continue reading SMC approves Benralizumab (Fasenra)
Last night I was catching up on reading some blogs and came across one that was written by one of the other people who attended HealtheVoices (HeV) who opened her blog post with my exact thoughts. She had been drafting and redrafting posts about her experiences of HealtheVoices and not knowing quite how to write… Continue reading My HealtheVoices19 experience!