an insight into my life with severe asthma, advocacy, awareness & research
Has anything really changed in the asthma landscape since World Asthma Day 2022? For the day to day living with asthma really not much has changed. The same frustrations are still there and sadly I think they will continue for many years. The has obviously been some positive changes especially with the approval of the… Continue reading World Asthma Day 2023
If you are on social media and follow some people in the asthma world you will see that this seems to be a big topic. You will also more than likely see this image: Ventolin Evohaler vs Ventolin Accuhaler The humble Ventolin Evohaler pMDI (pressurised metered dose inhaler) or puffer is taking a huge amount… Continue reading Going green with inhalers…..
The following blog post was shared on the Asthma UK Centre for Applied Research website. I was so privileged to speak at the Lung Health Cross Party Group meeting at the Scottish Parliament. I spoke about digital health and how I have integrated smart technology in my life. "Following her presentation to the Scottish Parliament… Continue reading Discussing smart technology for asthma self-management at the Lung Health Cross Party Group at the Scottish Parliament
Asthma UK- Asthma Health Technology Fund You may have seen on either the Asthma UK British Lung Foundation website or LinkedIn that there has been the launch of a multi million pound fund available to support the development of asthma health technologies. This fund I believe is so important because asthma lags behind other long… Continue reading Multi-million pound Asthma Health Technology Fund at Asthma UK
Recently on social media I have become so aware that many with asthma do not have the essential tools they need to enable them to manage their asthma effectively and live a life where asthma does not impede their daily routine. 1. Personal Asthma Action Plan (PAAP) or action plan for short. This is essential… Continue reading Essentials for Good Asthma Management
I have written before about the positives of having telephone clinic appointments but today I found the real downside. I was meant to have a clinic appointment last week but this was rearranged due to my consultant being off work. It was rearranged for next Monday so I was shocked when I was called today.… Continue reading Negatives of telephone clinic appointments
Living with asthma for over 30 years I have experienced a lot of different medication, types (and colours) of inhaler and ways of managing my asthma. The types of inhaler have gone varied from a metered dose inhaler with a nebuhaler (similar to the volumetric but longer and thinner), to the spin haler and rotahaler… Continue reading Digital health and tele-monitoring.
I was asked to write this blog post by Asthma UK as their report about severe and difficult asthma has just been published and the statistics are shocking. Asthma is not taken seriously or respected, some people don't take their medication as they are meant to for a variety of reasons but this can be… Continue reading Severe asthma- family and friends misconceptions.
Once again asthma has been in the press for all the wrong reasons. Despite the National Review of Asthma Deaths (NRAD) in 2014 it appears nothing has got much better. It was announced that asthma deaths in England and Wales (Scotland was not mentioned) are at their highest in over a decade. Over the years… Continue reading No-one is immune from a near fatal asthma attack.
I can't believe it is a year since I started on mepolizumab (mepo) a monoclonal anti body treatment to suppress my eosinophils in a bid to help my asthma. The big question is as it helped? I am not sure. My consultant seems to think it has and I am to continue on it. My… Continue reading A year on monoclonal antibody treatment
ANONYMOUS-ASTHMA 