an insight into my life with severe asthma, advocacy, awareness & research
This gets forgotten so many times. I have spent a lot of time thinking about this post, how I should word it and if I should share it but after speaking with a number of other volunteer patient advocates I feel it is important to share what we face. Firstly though I need to clarify… Continue reading Patient Advocates are volunteers
Patient advocates seem to give off this impression of being fearless, great speakers and always knowing the right thing to say. I often looked patient advocates and admired their confidence and strength for the work they do. I still do. It has only been in the last few years that I have really identified as… Continue reading Worries of being a patient advocate
Asthma UK- Asthma Health Technology Fund You may have seen on either the Asthma UK British Lung Foundation website or LinkedIn that there has been the launch of a multi million pound fund available to support the development of asthma health technologies. This fund I believe is so important because asthma lags behind other long… Continue reading Multi-million pound Asthma Health Technology Fund at Asthma UK
A lot of the work I do is speaking to people about what it is like to live with asthma. Asthma is a condition that you should be able to live with and it won't interfere too much but for so many people asthma dictates their life. It is so important for those who work… Continue reading Bringing the patient voice to Research and Development
When I woke from the coma and not being able to feel my leg never did I think that a year on there would be no improvement. To be honest I don't think the medics thought it was anything more than temporary too. Over the year I have experienced a lot of different emotions and… Continue reading A year on from that fateful day.
My social media platforms have been filled over the last few days with posts about HealtheVoices. The application deadline has been and gone. Yesterday people received their emails saying that they were accepted to HeV20 or were waitlisted or did not get in at all. It fills me with joy and sadness. Sadness because I… Continue reading Friendships from HealtheVoices
Wow where do I start. It takes a lot for me to be left speechless but I am unable to put into words the emotion and feelings from this past weekend. It sounds a bit cringe to say but it has been truly life changing. I have made so many new friends who I know… Continue reading To my new family and my tribe #HealtheVoices19
I am super excited and cannot remember if I posted about this before but now that everything is getting to the final stages and it is really going to happen I thought I would write a post all about this next exciting opportunity. HealtheVoices is not something I had heard. Fairly recently while looking on… Continue reading #HealtheVoices 2019
ANONYMOUS-ASTHMA 