PIP Change in Circumstances

PIP or Personal Independent Payments is the UK's disability payment scheme for those who's life is affected by their chronic condition. I wrote a few years ago about the different stages of the PIP application process which can be found here: Stage 1, Stage 2, and Stage 3. These posts were written back in 2017… Continue reading PIP Change in Circumstances

Shielding- our path out of lockdown.

A text saying Nicola Sturgeon is making an announcement regarding shielding at 12:30pm today 8th June filled me with excitement but also dread. As a Scot I have watched those living in England go on a huge rollercoaster and then be put in a blender. I don't think anyone in the shielding category in England… Continue reading Shielding- our path out of lockdown.

More ICU Flashbacks

I have written a lot over the years about my experience of being in ICU particularly the last admission to ICU which has really haunted me but I have managed to calm those terrors until now that is. It is really hard to get through your day without hearing or seeing something about corona virus… Continue reading More ICU Flashbacks

Another chapter ending in my life

"the uniform I love is the uniform that saves me and is killing me" has been a statement I have written many times over the years. I posted on social media a few weeks ago now to say that I would not be coming back to my job as a community dialysis nurse. I would… Continue reading Another chapter ending in my life

Corona Virus what does it mean for severe asthma?

Corona virus, COVID-19 or as I like to refer to it as "the virus" is the hot topic just now and rightly so especially as the World Health Organisation has just declared it to be a pandemic. I have not posted anything on facebook, instagram, twitter or my blog about the virus because everywhere is… Continue reading Corona Virus what does it mean for severe asthma?

Is severe asthma different to asthma?

In my last blog post I mentioned how I met some other people with severe asthma at a BLF-AUK event where we had a conversation about asthma and severe asthma. It may have the same mechanisms in that it is a condition where the airways become inflamed and irritated causing difficulty breathing but here ends… Continue reading Is severe asthma different to asthma?

BLF-AUK Respiratory Action Plan Meeting

I was recently at the first event since the partnership of ¬†Asthma UK and the British Lung Foundation. It was fantastic to see BLF colleagues with the Asthma UK logo on their name badges alongside the BLF logo. Also being welcomed with open arms too was lovely. I was a bit daunted to attend this… Continue reading BLF-AUK Respiratory Action Plan Meeting

What do you do when it all gets a little too much?

Ask for help. Living with a long term health condition comes with many challenges especially when it is a condition that comes with unpredictability and triggers out with your own control. The challenge of trying to live a normal life is tiring and it can feel like a full time job just trying to stay… Continue reading What do you do when it all gets a little too much?

One of the more unusual side effects of prednisilone

or at least we think it is. Otherwise it is just my body being weirder then it already is. After over a decade of being on oral steroids I thought I had come across most of the side effects. I have not experienced all of them but have heard of them or at least I… Continue reading One of the more unusual side effects of prednisilone

2019 the good, the bad & the ugly

With the new year fast approaching I like to reflect back on how the year has been and what I have achieved. Last years post can be found here¬†. My thought for 2019 was: 2019 is going to be a great year, a year to focus on achieving the best health I can and enjoy… Continue reading 2019 the good, the bad & the ugly