Patient Experience of Mechanical Ventilation

https://youtu.be/sYYjzNS3c3A I was asked to record a video for part of the Respiratory Critical Care session at the European Respiratory Society Congress. The session was titled "New Developments in Mechanical Ventilation and Ventilator Weaning" and my video was to focus on my experience of being weaned from a ventilator. Im not going to lie it… Continue reading Patient Experience of Mechanical Ventilation

Inhaler industry + tobacco industry= ……

not a good combination. A few weeks ago in the press there was a lot of interest in the story surrounding the UK inhaler group Vectura and Philip Morris International. Philip Morris International is one of the largest if not the largest tobacco company in the world. Vectura is a pharmaceutical company in the UK… Continue reading Inhaler industry + tobacco industry= ……

My Story living with severe asthma

but the publishing of my story in The Lancet Respiratory Medicine left a really bad taste in my mouth. The article was published back on the 7th July but I didnt know this. I didnt know until yesterday that it was live. I didnt find out it was live because The Lancet got in touch… Continue reading My Story living with severe asthma

Patient Aims vs Clinician Aims when managing long term conditions

Clinicians showing vulnerability and learning from patients is so refreshing. This is my recent experience which I wanted to share as I hope it will allow patients to understand clinicians but also hope that any clinicians reading this will understand what is important to us as patients. My involvement in the Severe Heterogenous Asthma Research… Continue reading Patient Aims vs Clinician Aims when managing long term conditions

An inspiring few days at the SHARP Stakeholder Board Meeting

If I had to be honest I was not sure what I thought would be the outcome of the Stakeholder Board Meeting for SHARP an ERS Clinical Research Collaboration. During my time as a patient involved in research I have been to many meetings, board meetings, scientific meetings and each time gone into the meeting… Continue reading An inspiring few days at the SHARP Stakeholder Board Meeting

Discussing smart technology for asthma self-management at the Lung Health Cross Party Group at the Scottish Parliament

The following blog post was shared on the Asthma UK Centre for Applied Research website. I was so privileged to speak at the Lung Health Cross Party Group meeting at the Scottish Parliament. I spoke about digital health and how I have integrated smart technology in my life. "Following her presentation to the Scottish Parliament… Continue reading Discussing smart technology for asthma self-management at the Lung Health Cross Party Group at the Scottish Parliament

COVID-19 Vaccine

It seems the entire country (I mean all 4 Scotland, England, Wales and Northern Ireland as well as Ireland) are waiting with baited breath as to when everyone will get vaccinated. Everyone will get the vaccine in time but we just need to be patient. We have managed this long we can manage a little… Continue reading COVID-19 Vaccine

Key Information Summary for those chronic health

I have had a Key Information Summary (KIS) on my notes for a number of years and until today I have always taken it for granted. For me it is something that has always been and I just assumed that it was something that everyone with a chronic health condition had. Today at an Asthma… Continue reading Key Information Summary for those chronic health

Pain Management Appointment

No one likes pain and I mean physical pain. We do what we can to limit ourselves from getting pain or alleviate the pain we feel. A pain word cloud with some of the terms I would use to describe my life with chronic pain (taken from google) I have lived with chronic pain related… Continue reading Pain Management Appointment