an insight into my life with severe asthma, advocacy, awareness & research
And what does severe asthma look like? Does having severe asthma look like this? Is this what severe asthma looks like? In all the photos above I have severe asthma (some of them are a lot older than others). In the top photos it doesn't look like there is anything wrong with me but the… Continue reading What is severe asthma really??
When it comes to my health I have a few security blankets one being my inhalers and the second my medic alert bracelet. When you live with a condition that can render you speechless it is a huge fear that I won't be able to tell anyone what is wrong with me if I need… Continue reading Medic Alert- my security blanket
It has been so concerning recently to see so many posts where people are really angry and say they have had an inhaler swap. When you explore a little bit more you find out that it is not actually an inhaler swap. We all have our preferred device, and brand of medication which can differ… Continue reading What is an inhaler swap?
Clinicians showing vulnerability and learning from patients is so refreshing. This is my recent experience which I wanted to share as I hope it will allow patients to understand clinicians but also hope that any clinicians reading this will understand what is important to us as patients. My involvement in the Severe Heterogenous Asthma Research… Continue reading Patient Aims vs Clinician Aims when managing long term conditions
World Delirium Day- 17th March 2021 Delirium is a serious disturbance in mental abilities that results in confused thinking and reduced awareness of the environment. Delirium is rarely spoken about. Many people can feel ashamed because of the delirium they experienced due to the memories they have. There is often the perception that if you are… Continue reading ‘Forgetting difficult hospital admissions but then being haunted by memories and not being able to put them together and make sense of them all’
PIP or Personal Independent Payments is the UK's disability payment scheme for those who's life is affected by their chronic condition. I wrote a few years ago about the different stages of the PIP application process which can be found here: Stage 1, Stage 2, and Stage 3. These posts were written back in 2017… Continue reading PIP Change in Circumstances
aaaaaaaaaaahhhhh they are stopping making one of my drugs!!! A phone call from my pharmacist to tell me that they cannot get hold of one of my drugs is something no patient ever likes to hear let alone during lockdown and even less so when it is one of your allergy meds and you have… Continue reading Drugs going out of stock in lockdown
Yes Dr, I will take that as you prescribe despite the horrible side effects stopping me living my life. How often have you found yourself doing this? Do you know that you can speak up and disagree with your Dr or healthcare provider. In the UK when it comes to healthcare traditionally we are not… Continue reading You can disagree with your Dr, its called self advocating.
In my last blog post I mentioned how I met some other people with severe asthma at a BLF-AUK event where we had a conversation about asthma and severe asthma. It may have the same mechanisms in that it is a condition where the airways become inflamed and irritated causing difficulty breathing but here ends… Continue reading Is severe asthma different to asthma?
I am not actually sure what title to give this post. I was recently in a consultation type meeting with a range of service users to discuss the nursing program at one of the universities in Edinburgh. They are being revalidated and want to make sure that the course is producing the best possible nurses… Continue reading Getting medication on time.
ANONYMOUS-ASTHMA 