PIP or Personal Independent Payments is the UK's disability payment scheme for those who's life is affected by their chronic condition. I wrote a few years ago about the different stages of the PIP application process which can be found here: Stage 1, Stage 2, and Stage 3. These posts were written back in 2017… Continue reading PIP Change in Circumstances
aaaaaaaaaaahhhhh they are stopping making one of my drugs!!! A phone call from my pharmacist to tell me that they cannot get hold of one of my drugs is something no patient ever likes to hear let alone during lockdown and even less so when it is one of your allergy meds and you have… Continue reading Drugs going out of stock in lockdown
Yes Dr, I will take that as you prescribe despite the horrible side effects stopping me living my life. How often have you found yourself doing this? Do you know that you can speak up and disagree with your Dr or healthcare provider. In the UK when it comes to healthcare traditionally we are not… Continue reading You can disagree with your Dr, its called self advocating.
In my last blog post I mentioned how I met some other people with severe asthma at a BLF-AUK event where we had a conversation about asthma and severe asthma. It may have the same mechanisms in that it is a condition where the airways become inflamed and irritated causing difficulty breathing but here ends… Continue reading Is severe asthma different to asthma?
I am not actually sure what title to give this post. I was recently in a consultation type meeting with a range of service users to discuss the nursing program at one of the universities in Edinburgh. They are being revalidated and want to make sure that the course is producing the best possible nurses… Continue reading Getting medication on time.
On Tuesday 1st May is was World Asthma Day. I normally do something during the day, or post a video etc raising awareness about asthma, how serious it is, how critically under funded research into asthma is. This year however I didnt do anything I just wasn't well enough, my chest was far from good… Continue reading World Asthma Day
The other day I picked up my medication from the pharmacy and laughed when the handed me over a shopping back but then went back for another one!!! I know all the people in my pharmacy well and will always have a chat with them but I have never really told them whats wrong with… Continue reading Whats your reality??
You don't.... I like my life to be quite ordered. I like to know what I'm doing day to day, week to week. Many think I am stuck in my ways but I like routine. Routine gets me through, it means I know where I am. Recently I have found my asthma has been not… Continue reading How do you get used to to living in a state of instability?
I read an article recently which challenged my thoughts on modern medicine and how I have become totally reliant on pharmaceutical products. I am so thankful for all the developments in medicine and where medication is now. Everyday I take a concoction of medication and far too many for someone in their late twenties almost… Continue reading Pharmaceutically Enhanced!
Myself and Karen (Captain at Craigmillar Park Golf Club) want to thank all those who participated, volunteered, donated prizes, and helped make the day such a great success. A huge amount of money was raised and it was way above our target but the money everyone donated and help raise will go towards ground breaking… Continue reading A big thank you from myself and Karen