Women with asthma

Did you know women are twice as likely to die from asthma than men are? Living with asthma is horrible. To keep it stable there are so many considerations you need to think about compared to someone without asthma. For me my mind is always racing and I am checking my surroundings to make sure… Continue reading Women with asthma

A New Vision for Lung Health

On Tuesday evening I attended one of my first face to face events since the COVID-19 pandemic started. I cannot begin to explain how good it was to be back at an in person event. A few months ago the rebranding of the Asthma UK and British Lung Foundation Partnership was unveiled. Along with new… Continue reading A New Vision for Lung Health

Horrified watching incorrect asthma advice on daytime TV

Normally I would be excited and shouting from the rooftops that there has been a segment dedicated to asthma on a very popular morning TV show. Not this time, quite the opposite. Everyone in the asthma field (patients, clinicians, pharmacists, industry, pharma as well as many more) has been left stunned and in utter disbelief… Continue reading Horrified watching incorrect asthma advice on daytime TV

Going green with inhalers…..

If you are on social media and follow some people in the asthma world you will see that this seems to be a big topic. You will also more than likely see this image: Ventolin Evohaler vs Ventolin Accuhaler The humble Ventolin Evohaler pMDI (pressurised metered dose inhaler) or puffer is taking a huge amount… Continue reading Going green with inhalers…..

Finding my Positive Mental Attitude

I am well aware I have neglected my blog and there have been no posts for sometime. I have sat down so many times to try and write but just nothing comes out. If I am honest I have been struggling a lot over the past 4-5 months. I feel lost in myself and couldn't… Continue reading Finding my Positive Mental Attitude

Are patient co-authors an equal part in the research team?

The short answer is NO and there needs to be a big changes for that to happen. I have actually written this blog post twice. The first incarnation was me getting my feelings off my chest but I decided not to post it as it would not be helpful to anyone. Instead I have decided… Continue reading Are patient co-authors an equal part in the research team?

Patient Experience of Mechanical Ventilation

https://youtu.be/sYYjzNS3c3A I was asked to record a video for part of the Respiratory Critical Care session at the European Respiratory Society Congress. The session was titled "New Developments in Mechanical Ventilation and Ventilator Weaning" and my video was to focus on my experience of being weaned from a ventilator. Im not going to lie it… Continue reading Patient Experience of Mechanical Ventilation

Inhaler industry + tobacco industry= ……

not a good combination. A few weeks ago in the press there was a lot of interest in the story surrounding the UK inhaler group Vectura and Philip Morris International. Philip Morris International is one of the largest if not the largest tobacco company in the world. Vectura is a pharmaceutical company in the UK… Continue reading Inhaler industry + tobacco industry= ……

My Story living with severe asthma

but the publishing of my story in The Lancet Respiratory Medicine left a really bad taste in my mouth. The article was published back on the 7th July but I didnt know this. I didnt know until yesterday that it was live. I didnt find out it was live because The Lancet got in touch… Continue reading My Story living with severe asthma

Patient Aims vs Clinician Aims when managing long term conditions

Clinicians showing vulnerability and learning from patients is so refreshing. This is my recent experience which I wanted to share as I hope it will allow patients to understand clinicians but also hope that any clinicians reading this will understand what is important to us as patients. My involvement in the Severe Heterogenous Asthma Research… Continue reading Patient Aims vs Clinician Aims when managing long term conditions