I have written before about the positives of having telephone clinic appointments but today I found the real downside. I was meant to have a clinic appointment last week but this was rearranged due to my consultant being off work. It was rearranged for next Monday so I was shocked when I was called today.… Continue reading Negatives of telephone clinic appointments
I saw in the news the other day a story that truly shocked me. To sum it up basically a severe asthmatic boarded an Easyjet plane only to be shouted at by the Pilot and jeered at by the rest of the passengers because he refused to wear a face covering despite having proof of… Continue reading Being Asthmatic with Easyjet
Over the past few weeks I have struggled to get motivation to write here in my blog but today I received a message which reminded me just how important it is for me to write my blog. I started by writing my blog because I am not good at talking about how I feel or… Continue reading Why I continue to write my blog
For a number of years now I have struggled with pain in my chest from the years of severe asthma which has led to scarring mainly on my left side. There has been scarring building up in the pleural space and makes each breath feel like my lung is rubbing against my chest wall. You… Continue reading Pain Management
Made my TV debut!! Last week I was asked by the British Lung Foundation if I would be willing to be interviewed for Reporting Scotland. The interview all hinged on Nicola Sturgeon announcing changes to shielding on the Thursday (23rd July 2020). If things went Pete Tong in Scotland she would not be making any… Continue reading Reporting Scotland: Shielding Changes
aaaaaaaaaaahhhhh they are stopping making one of my drugs!!! A phone call from my pharmacist to tell me that they cannot get hold of one of my drugs is something no patient ever likes to hear let alone during lockdown and even less so when it is one of your allergy meds and you have… Continue reading Drugs going out of stock in lockdown
Living with asthma for over 30 years I have experienced a lot of different medication, types (and colours) of inhaler and ways of managing my asthma. The types of inhaler have gone varied from a metered dose inhaler with a nebuhaler (similar to the volumetric but longer and thinner), to the spin haler and rotahaler… Continue reading Digital health and tele-monitoring.
I cant believe it was 365 days ago since the last World Asthma Day and 6 years since I really embarked on my journey into Patient and Public Involvement. I cant believe that when I did this newspaper article for World Asthma Day in 2014 I had no idea about where it would take me.… Continue reading World Asthma Day 2020
I have written a lot over the years about my experience of being in ICU particularly the last admission to ICU which has really haunted me but I have managed to calm those terrors until now that is. It is really hard to get through your day without hearing or seeing something about corona virus… Continue reading More ICU Flashbacks
In my last blog post I mentioned how I met some other people with severe asthma at a BLF-AUK event where we had a conversation about asthma and severe asthma. It may have the same mechanisms in that it is a condition where the airways become inflamed and irritated causing difficulty breathing but here ends… Continue reading Is severe asthma different to asthma?