PIP or Personal Independent Payments is the UK's disability payment scheme for those who's life is affected by their chronic condition. I wrote a few years ago about the different stages of the PIP application process which can be found here: Stage 1, Stage 2, and Stage 3. These posts were written back in 2017… Continue reading PIP Change in Circumstances
How did I end up with 6 other conditions plus just from one medication I take for severe asthma. The scary thing is I am not alone. This word cloud represents all the conditions a small selection of people have as a result of severe asthma. I asked a support group on social media as… Continue reading Did you know severe asthma is way more than only severe asthma??
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One thing I have become very aware of is how we adapt to recovery in different ways. This last hospital admission has really highlighted that to me as recovery has been far from straight forward and a totally new experience for me- even after getting my knee operated on was easier than this. Previously when… Continue reading Recovery- its not easy and so frustrating!!
Under a month ago I was writing about how I had been a year on mepolizumab. The drug that I thought was going to be my wonder drug and make my asthma easy to control or so I thought. You can read the post here. Part of me wonders did I know deep down that… Continue reading We need to stop Mepolizumab
Many on long term oral prednisolone will be familiar with the saying that it is the gift that keeps on giving. It is the one medication that gives those who are taking it life but also results in many secondary conditions resulting due to the side effects and the prolonged side effects. I have written… Continue reading The gift that keeps on giving!!
Oral steroids like prednisolone come with a vast array of side effects. Some of these side effects can be very visible such as weight gain, or thinning skin but these are not the side effects to be worried about. It is the silent side effects that we don't see that need to most attention and… Continue reading Oral Steroids and Bone Health
This past week has been really tough. Asthma is one of those conditions that is on a spectrum. Going from those with the mildest of asthma to those with the most severe and life threatening asthma you get everyone across the board and you can not pick out the one person with mild and the… Continue reading It’s ok to not be ok.
Thats the second dose of mepolizumab done and dusted. Now to wait till next month for my next injection next month. So many people have been asking me how I feel and if the new drug is helping or making a difference, or ask me when I will start noticing the benefits. Its really hard… Continue reading 2nd dose of Mepolizumab in the bag
I get my medication each week in a dosette box made up by my local pharmacist. I take so many medications that when I am not well I find it hard to work out what I have taken and what I still need to take. I now don't need to think about what I take,… Continue reading Chronic Pain with Chronic Illness