aaaaaaaaaaahhhhh they are stopping making one of my drugs!!! A phone call from my pharmacist to tell me that they cannot get hold of one of my drugs is something no patient ever likes to hear let alone during lockdown and even less so when it is one of your allergy meds and you have… Continue reading Drugs going out of stock in lockdown
In my last blog post I mentioned how I met some other people with severe asthma at a BLF-AUK event where we had a conversation about asthma and severe asthma. It may have the same mechanisms in that it is a condition where the airways become inflamed and irritated causing difficulty breathing but here ends… Continue reading Is severe asthma different to asthma?
After being seen in neurology I felt kind of positive. I was excited because I was going to be part of a trial for the type of nerve injury I have. I have just received the clinic letter which is eye opening and reading the findings just makes it feel so much more complex. It… Continue reading Struggling to stay positive
I was asked to write this blog post by Asthma UK as their report about severe and difficult asthma has just been published and the statistics are shocking. Asthma is not taken seriously or respected, some people don't take their medication as they are meant to for a variety of reasons but this can be… Continue reading Severe asthma- family and friends misconceptions.
This weekend was a fantastic weekend. It was the MacRobert Tournament which this year was the biggest in the tournaments history with teams coming up from Leeds, Manchester and across from Norway. It was fantastic playing just women's lacrosse as well as mixed lacrosse. Women lacrosse is no different in its rules but you do… Continue reading No matter how much preparation asthma can still bite!!!
I done a lot of blogging recently but it is because I feel things that have been happening are important to understand what it is really like living with difficult to control (brittle) asthma. Last week I have had such a good week and been on a high with the amount I can do and… Continue reading Brittle Asthma is brittle for a reason.
I spoke too soon. I wonder if I tempted fate by getting excited about the recent success of my oral steroid reduction. I felt not too bad after the first few days after I reduced but I then started to feel not great. I can't put my finger on what it was exactly but I… Continue reading Spoke too soon!
For any asthmatic or any person who needs to be seen in a clinic or Drs surgery they will more often than not be requested to do some kind of breathing test. In a GP setting this tends to be peak flow measuring your peak expiratory flow rate in litres per minute. Pretty much every… Continue reading Breathing tests every two weeks- every patients nightmare
For the longest time I have been willing for the day when I really feel like I am starting to get better and have my life back. I guess just going back to the "normal" me. I always thought they day would come when a cure for asthma was found or my consultant tried a… Continue reading Dreams are perhaps coming true!
Recently I have found it really tough trying to deal with everyday life and my asthma together. It felt like a full-time job just staying well, making sure I took all my treatment etc and then live life too. It was just way too much physically and mentally. When dealing with physical health troubles there… Continue reading Learning to be kind to yourself.