Struggling to stay positive

After being seen in neurology I felt kind of positive. I was excited because I was going to be part of a trial for the type of nerve injury I have. I have just received the clinic letter which is eye opening and reading the findings just makes it feel so much more complex. It… Continue reading Struggling to stay positive

The Verdict!!

I have been fairly quiet recently mainly because I was terrified. I have had 3 doses of Mepolizumab and was due to attend clinic and see my consultant for the verdict and find out if I am staying on it or not. The good news is that I am staying on it for now. Clinic… Continue reading The Verdict!!

New horizons- not knowing how to feel!

In March/April for me my asthma care hit a wall and I could no longer continue as I ¬†was. Despite my consultant being one of the best in the field of difficult to control asthma I was getting no where, I was feeling lost, totally out of control and no idea what I was doing… Continue reading New horizons- not knowing how to feel!

Clinic apps vs being a good patient vs being a bad patient

The past year I have found to be very long and it feels like one long constant fight for normality which I am losing little by little. Working in the healthcare profession I know all the well about the cost on the NHS when patients do not attend their appointments but recently I have really… Continue reading Clinic apps vs being a good patient vs being a bad patient