A lot of the work I do is speaking to people about what it is like to live with asthma. Asthma is a condition that you should be able to live with and it won't interfere too much but for so many people asthma dictates their life. It is so important for those who work… Continue reading Bringing the patient voice to Research and Development
Yes Dr, I will take that as you prescribe despite the horrible side effects stopping me living my life. How often have you found yourself doing this? Do you know that you can speak up and disagree with your Dr or healthcare provider. In the UK when it comes to healthcare traditionally we are not… Continue reading You can disagree with your Dr, its called self advocating.
I am not actually sure what title to give this post. I was recently in a consultation type meeting with a range of service users to discuss the nursing program at one of the universities in Edinburgh. They are being revalidated and want to make sure that the course is producing the best possible nurses… Continue reading Getting medication on time.
With the new year fast approaching I like to reflect back on how the year has been and what I have achieved. Last years post can be found here . My thought for 2019 was: 2019 is going to be a great year, a year to focus on achieving the best health I can and enjoy… Continue reading 2019 the good, the bad & the ugly
I am super excited and cannot remember if I posted about this before but now that everything is getting to the final stages and it is really going to happen I thought I would write a post all about this next exciting opportunity. HealtheVoices is not something I had heard. Fairly recently while looking on… Continue reading #HealtheVoices 2019
Gosh! Im getting used to being the only patient speaking at research events!!! Today NHS Research Scotland (NRS) held an away day in Edinburgh with a variety of researchers, research managers, R&D, members of the CSO and various others. There was also me- not a researcher, research manager or in any of the other positions… Continue reading NHS Research Scotland Away day!
I have quite a few different blogs in my head after my last hospital admission due to a variety of things that happened. Where better than to start at the beginning. It was the usual start= difficulty breathing so did I usual nebuliser treatments and thought I should probably call 999 as I wasn't getting… Continue reading Patient Centred Care
I smile to myself as I write this post for a number of reasons. It seems apt to write this while I can't sleep because of my asthma and am sitting on the couch hunched over with a neb making it easier to breathe- I wish I could just relax back it would be so… Continue reading “Just relax and concentrate on your breathing”
After my last post about pulse oximeters and oxygen saturations some of the comments were interesting and not surprising. One of the most common things you hear when having an asthma attack is "your sats are fine your ok". As a nurse your trained to look at signs first and then symptoms but often we… Continue reading Signs vs Symptoms
Feel like that duck you see calmly swimming in the pond but take a look under the water and his feet are paddling furiously just to keep a float. Chest wise I feel that I am managing to keep the outside world seeing me as ok but when I leave work and get back home… Continue reading Feel like that duck…