Evidently Cochrane Blog: Living with Long Term Conditions Part 2

In the second part of a two-part blog for our special series on living with long-term conditions, Brian Devlin, Ceri Dare, Genna White and Olivia Fulton, the four Cochrane UK Consumer Champions, and Emma Doble, Cochrane UK’s Patient and Consumer Coordinator, reflect on making treatment decisions, what they want healthcare professionals to know, and what they would tell their… Continue reading Evidently Cochrane Blog: Living with Long Term Conditions Part 2

Evidently Cochrane Blog: Living with Long Term Conditions Part 1

(I need to say I have just copied this from the Evidently Cochrane site. I have copied it word for word and not made any edits.) Living with a long-term condition: five perspectives – part 1 BY BRIAN DEVLIN, CERI DARE, EMMA DOBLE, GENNA WHITE AND OLIVIA FULTON JUNE 15, 2021 //  COMMENT(S)TWEETSHARE In the first part of a… Continue reading Evidently Cochrane Blog: Living with Long Term Conditions Part 1

Confidence in your own voice

Surprisingly I never used to be vocal. 5 years ago I used to much rather sit in a room, listen and not participate. I felt like I had no right to contribute to the conversation because who was I. I was just a patient, a person who lived with a chronic health condition, but I… Continue reading Confidence in your own voice

Cochrane Consumer Champion

I am really proud to have become a Cochrane Consumer Champion. Without sounding cliche I never imagined "my journey" in patient and public involvement (PPI) with the Asthma UK Centre for Applied Research would take me to where I am now. What started as reviewing a few patient information sheets has led to being a… Continue reading Cochrane Consumer Champion

“I can only please one person at a time. Today I choose me”

I recently read a blog post by Sally Crowe, who wrote about how her mental health was impacted after going through cancer treatment. She was diagnosed with cancer related post traumatic stress (you can read the blog post here). Sally chose this image: “Gardening as a metaphor for ‘tending trauma’, and learning to live alongside… Continue reading “I can only please one person at a time. Today I choose me”