This gets forgotten so many times. I have spent a lot of time thinking about this post, how I should word it and if I should share it but after speaking with a number of other volunteer patient advocates I feel it is important to share what we face. Firstly though I need to clarify… Continue reading Patient Advocates are volunteers
Tag: patient advocate
Confidence in your own voice
Surprisingly I never used to be vocal. 5 years ago I used to much rather sit in a room, listen and not participate. I felt like I had no right to contribute to the conversation because who was I. I was just a patient, a person who lived with a chronic health condition, but I… Continue reading Confidence in your own voice
Discussing smart technology for asthma self-management at the Lung Health Cross Party Group at the Scottish Parliament
The following blog post was shared on the Asthma UK Centre for Applied Research website. I was so privileged to speak at the Lung Health Cross Party Group meeting at the Scottish Parliament. I spoke about digital health and how I have integrated smart technology in my life. "Following her presentation to the Scottish Parliament… Continue reading Discussing smart technology for asthma self-management at the Lung Health Cross Party Group at the Scottish Parliament
Attending (online) conferences as a patient.
The patient voice is becoming such a valuable asset to medicine, medical research, pharma development and medical conferences. After all you can learn all the technical stuff about the anatomy and physiology in text books but you can never learn just what it is like to live with a certain condition unless you go through… Continue reading Attending (online) conferences as a patient.
Worries of being a patient advocate
Patient advocates seem to give off this impression of being fearless, great speakers and always knowing the right thing to say. I often looked patient advocates and admired their confidence and strength for the work they do. I still do. It has only been in the last few years that I have really identified as… Continue reading Worries of being a patient advocate
Let’s Get Positive!!
The world is full of negativity just now due to the COVID-19 pandemic. It is naturally a scary time with uncertainty about what the future holds. We don't have the ability to plan going forward as no one knows when the restrictions we have in place will be lifted. Normally around this time of year… Continue reading Let’s Get Positive!!
ICUsteps Webinar- Being a Younger Person in Intensive Care
Watch the webinar I took part in for ICUsteps. I spoke about my experience of being a young person in ICU.
Cochrane Consumer Champion
I am really proud to have become a Cochrane Consumer Champion. Without sounding cliche I never imagined "my journey" in patient and public involvement (PPI) with the Asthma UK Centre for Applied Research would take me to where I am now. What started as reviewing a few patient information sheets has led to being a… Continue reading Cochrane Consumer Champion
Finding your other path in life.
From a young age we all have our dreams and aspirations as to what we want to be or do when we grow up. Our childhood dreams often don't quite equate to the reality of life. When we grow up you think that being Superman is just as much a possibility as being a Dr.… Continue reading Finding your other path in life.
New article I wrote for TEVA Life Effects Platform
I am very fortunate that I write for TEVA Pharmaceuticals Life Effects Platform about my experience of living with severe asthma. This month I wrote about my experience of wearing a face covering during COVID19 including some experiences I have had with different face coverings as well as some good and bad times when out… Continue reading New article I wrote for TEVA Life Effects Platform