Patient advocates seem to give off this impression of being fearless, great speakers and always knowing the right thing to say. I often looked patient advocates and admired their confidence and strength for the work they do. I still do. It has only been in the last few years that I have really identified as… Continue reading Worries of being a patient advocate
My social media platforms have been filled over the last few days with posts about HealtheVoices. The application deadline has been and gone. Yesterday people received their emails saying that they were accepted to HeV20 or were waitlisted or did not get in at all. It fills me with joy and sadness. Sadness because I… Continue reading Friendships from HealtheVoices
A phone call with author of Stumbling in Flats turned from working with pharma to writing in blog posts. A blogger for 13/14 years I have never thought about my blog posts and I have made it known that I just let my fingers do the work letting the words flow from brain to the page.… Continue reading How do you write a blog post?
The past few weeks have been really tough, Im not going to lie but there have been some very dark times and hard times. Although my lungs and breathing have been manageable it has been bad enough to limit what I am doing and I have had to increase my steroids again to get me… Continue reading Looking back at #HealtheVoices19
Its now the end of the week and since my last post things have been a lot better. I must say the support I have received over this week from others who also have chronic health issues has been over whelming. It was both reassuring and shocking to read comments from people saying they could… Continue reading Feeling much better and more positive!!
Last night I was catching up on reading some blogs and came across one that was written by one of the other people who attended HealtheVoices (HeV) who opened her blog post with my exact thoughts. She had been drafting and redrafting posts about her experiences of HealtheVoices and not knowing quite how to write… Continue reading My HealtheVoices19 experience!
Wow where do I start. It takes a lot for me to be left speechless but I am unable to put into words the emotion and feelings from this past weekend. It sounds a bit cringe to say but it has been truly life changing. I have made so many new friends who I know… Continue reading To my new family and my tribe #HealtheVoices19
2016 has been a pretty awful year. There have been highs but there has also been some mega low points so like much of the world I am looking forward to 2017 and to it being better than this year has been. January, I guess the start of the year set it off, after being… Continue reading 2016 Round Up!
You don't.... I like my life to be quite ordered. I like to know what I'm doing day to day, week to week. Many think I am stuck in my ways but I like routine. Routine gets me through, it means I know where I am. Recently I have found my asthma has been not… Continue reading How do you get used to to living in a state of instability?
Last night I tried indoor rock climbing for the first time. Well rock climbing of any sort. I have never tried anything like it but it was great fun. I was a bit nervous about it and worried it would be something that yet again I would do a bit of and then have to… Continue reading Trying new things- rock climbing!