an insight into my life with severe asthma, advocacy, awareness & research
Today Asthma + Lung Uk launched their campaign End the Lung Health Lottery. They have collected data which has been analysed and the results are shocking. Depending on where you live in the UK will depend on your lung health outcomes. If you live in an area of higher deprivation the higher the chance that… Continue reading Lung Health Lottery
I am so excited, I cannot contain myself!! Yesterday a smoking ban on NHS hospital sites came into force. This new law means that no one on a NHS hospital site can smoke within 15m of a hospital building and cannot smoke under any overhangs of buildings either. This law is enforceable and people who… Continue reading Smoking Ban on NHS Hospital sites comes into force
https://youtu.be/sYYjzNS3c3A I was asked to record a video for part of the Respiratory Critical Care session at the European Respiratory Society Congress. The session was titled "New Developments in Mechanical Ventilation and Ventilator Weaning" and my video was to focus on my experience of being weaned from a ventilator. Im not going to lie it… Continue reading Patient Experience of Mechanical Ventilation
Watch the webinar I took part in for ICUsteps. I spoke about my experience of being a young person in ICU.
Perspectives of being a younger person in the Intensive Care Unit. Over the years I written about my experiences in ICU in a very factual manner but I have never really spoken about the true impact it has had on me and even now I don't really tell people all the details of some things.… Continue reading ICUsteps Webinar
How can you feel like the odd one out at an ICU support group? I have written before many times that due to my asthma I end up in ICU a lot. I have written about my time in ICU and what happened but I don't think I have written much about the psychological impact… Continue reading Feeling like the odd one out at ICU support group
I have written a lot over the years about my experience of being in ICU particularly the last admission to ICU which has really haunted me but I have managed to calm those terrors until now that is. It is really hard to get through your day without hearing or seeing something about corona virus… Continue reading More ICU Flashbacks
In my last blog post I mentioned how I met some other people with severe asthma at a BLF-AUK event where we had a conversation about asthma and severe asthma. It may have the same mechanisms in that it is a condition where the airways become inflamed and irritated causing difficulty breathing but here ends… Continue reading Is severe asthma different to asthma?
or at least we think it is. Otherwise it is just my body being weirder then it already is. After over a decade of being on oral steroids I thought I had come across most of the side effects. I have not experienced all of them but have heard of them or at least I… Continue reading One of the more unusual side effects of prednisilone
I was so happy and excited when my Mum said we were going to be going skiing in January. (I have not skied in over 6 years now. Once my life, I ski raced, I did race training and was on the slopes whenever I could. I moved to Canada to pursue my dream career).… Continue reading Making tough decisions
ANONYMOUS-ASTHMA 