an insight into my life with severe asthma, advocacy, awareness & research
And what does severe asthma look like? Does having severe asthma look like this? Is this what severe asthma looks like? In all the photos above I have severe asthma (some of them are a lot older than others). In the top photos it doesn't look like there is anything wrong with me but the… Continue reading What is severe asthma really??
I am so excited, I cannot contain myself!! Yesterday a smoking ban on NHS hospital sites came into force. This new law means that no one on a NHS hospital site can smoke within 15m of a hospital building and cannot smoke under any overhangs of buildings either. This law is enforceable and people who… Continue reading Smoking Ban on NHS Hospital sites comes into force
https://youtu.be/sYYjzNS3c3A I was asked to record a video for part of the Respiratory Critical Care session at the European Respiratory Society Congress. The session was titled "New Developments in Mechanical Ventilation and Ventilator Weaning" and my video was to focus on my experience of being weaned from a ventilator. Im not going to lie it… Continue reading Patient Experience of Mechanical Ventilation
There is no excerpt because this is a protected post.
Under a month ago I was writing about how I had been a year on mepolizumab. The drug that I thought was going to be my wonder drug and make my asthma easy to control or so I thought. You can read the post here. Part of me wonders did I know deep down that… Continue reading We need to stop Mepolizumab
How often do we read or hear that asthma is "just asthma" and an inhaler will fix it all. Everyone knows someone who has asthma but not everyone knows how bad asthma can be and that it kills people. 3 people die each day in the UK compared to the 10 across the United States.… Continue reading Are asthmatics who post on social media one reason why asthma is considered as “just asthma”?
Today has been one of those days where it feels like there is no air. You are left gasping for breath just moving a few meters and even sitting still feels like you are trying to breathe through a pillow. It is horrible and unrelenting. Not only is there no air and very humid the… Continue reading What do you do on days when there is no air??
It is hard to believe that I have been involved in the Asthma UK Centre for Applied Research for 5 years now. Time has gone so quickly. I have had some amazing experiences as a result fo being involved, met some wonderful people and made friendships that I hope will last for a long time… Continue reading AUKCAR ASM NRS Talk
Asthma has been in the news a lot recently, most of this has been reports on how awful the asthma care is for those with asthma in the UK. It is not all negative and there has been the odd positive bit of reporting such as new drugs being developed or gaining approval for use… Continue reading Asthma in the news
No one can have missed the news recently about the NHS Long Term Plan for NHS England. Even those of us not living in England can't miss it!!! I know I live in Scotland so it does not impact me directly but I am pretty sure the Scottish Government will take on a lot of… Continue reading The NHS Long Term Plan
ANONYMOUS-ASTHMA 