Made my TV debut!! Last week I was asked by the British Lung Foundation if I would be willing to be interviewed for Reporting Scotland. The interview all hinged on Nicola Sturgeon announcing changes to shielding on the Thursday (23rd July 2020). If things went Pete Tong in Scotland she would not be making any… Continue reading Reporting Scotland: Shielding Changes
In my last blog post I mentioned how I met some other people with severe asthma at a BLF-AUK event where we had a conversation about asthma and severe asthma. It may have the same mechanisms in that it is a condition where the airways become inflamed and irritated causing difficulty breathing but here ends… Continue reading Is severe asthma different to asthma?
Back on 10th December the news hit the headlines that Asthma UK are to merge with the British Lung Foundation (BLF). It was met online with mixed reviews particularly by fellow asthmatics. I think there was a concern that asthma as a condition might get lost because the BLF covers such a wide range of… Continue reading The Asthma UK and British Lung Foundation Partnership
With the new year fast approaching I like to reflect back on how the year has been and what I have achieved. Last years post can be found here . My thought for 2019 was: 2019 is going to be a great year, a year to focus on achieving the best health I can and enjoy… Continue reading 2019 the good, the bad & the ugly
Having a conversation with a friend this evening and I was so shocked to hear about her recent experience being diagnosed with asthma. A prolonged cough, wheezing and breathlessness the GP was unable to get on top of things so she was referred on to the hospital to see what was going on. Lung function… Continue reading Getting it right for a newly diagnosed asthmatic.
There is so much research into asthma just now looking at a cure for asthma, better management, getting asthmatics to comply with treatment better but research into asthma death, often a taboo subject to talk about is vital to make any change in the shocking asthma statistics. Ann an children's asthma nurse specialist is also… Continue reading Asthma Death in Children
Tuesday evening I had a fantastic time. It was the first meeting for the Critical Care Patient and Public Involvement Group in Edinburgh. Patient and Public Involvement (PPI) in Scotland is no where near as organised as it is in England and funding is woeful, so to establish and run a group is a huge… Continue reading Critical Care does PPI
Gosh! Im getting used to being the only patient speaking at research events!!! Today NHS Research Scotland (NRS) held an away day in Edinburgh with a variety of researchers, research managers, R&D, members of the CSO and various others. There was also me- not a researcher, research manager or in any of the other positions… Continue reading NHS Research Scotland Away day!
On twitter recently you may have seen that I had a small rant about something that happened the other day and I am still reeling over it. I think what got me most is that how are we ever going to change attitudes towards asthma if those with asthma are so cavalier about it. I… Continue reading Asthma Rule 1: ALWAYS have your reliever with you.
Being on sick leave seems to be an all too common occurrence for me. It is never just a day either its weeks and weeks which feels like months and months (well sometimes it is months). Often people say to me they would love to be off for as long as I have been off… Continue reading Sick leave- what do you do??