Last September I started the Severe Asthma Peer Support Group with the support of Asthma + Lung UK. Unfortunately this has not worked out so I am now running the group independently from Asthma + Lung UK. It was not an easy decision to make, and I had many sleepless nights thinking about what I… Continue reading Severe Asthma Peer Support Group
A New Vision for Lung Health
On Tuesday evening I attended one of my first face to face events since the COVID-19 pandemic started. I cannot begin to explain how good it was to be back at an in person event. A few months ago the rebranding of the Asthma UK and British Lung Foundation Partnership was unveiled. Along with new… Continue reading A New Vision for Lung Health
Feeling like the odd one out at ICU support group
How can you feel like the odd one out at an ICU support group? I have written before many times that due to my asthma I end up in ICU a lot. I have written about my time in ICU and what happened but I don't think I have written much about the psychological impact… Continue reading Feeling like the odd one out at ICU support group
Disabled looks like me Campaign
"Disabled looks like me" campaign with Leonard Cheshire and Mimi Butlin is very close to my heart for a number of reasons. The first one is that the aim of the campaign is to breakdown disability stereotypes. One thing I used to get really upset and angry about is being judged because I didn't look how… Continue reading Disabled looks like me Campaign
The Asthma UK and British Lung Foundation Partnership
Back on 10th December the news hit the headlines that Asthma UK are to merge with the British Lung Foundation (BLF). It was met online with mixed reviews particularly by fellow asthmatics. I think there was a concern that asthma as a condition might get lost because the BLF covers such a wide range of… Continue reading The Asthma UK and British Lung Foundation Partnership
The last few days I have been down in Manchester at the Annual Scientific Meeting for the Asthma UK Centre for Applied Research. It was a great few days. all kicked off by an entertaining dinner with the centre director and post grad and network co-ordinator who learnt the value of Twitter and what you… Continue reading #aukcarASM15
A mutual understanding with Asthma UK
A while ago I posted about how angry and disgruntled I was with Asthma UK. They had taken the decision to close their offices in Scotland, Wales and Northern Ireland. To say I went off the deep end would be a small under statement. I felt hurt as it was the Asthma UK Scotland office… Continue reading A mutual understanding with Asthma UK
Craigmillar Park Charity Golf Day 14th August
On Friday Craigmillar Park Golf Club hosted a charity golf day to raise money for Asthma UK. Golf club Captain Karen wanted to host a charity day and the fact that she chose Asthma UK was brilliant. She had said she never knew how bad asthma could be until she met me. I still can't… Continue reading Craigmillar Park Charity Golf Day 14th August
There are some amazing people out there!!
This end of this week is a really special day. Not only is it my Dad's birthday but it is also the Craigmillar Park Charity Golf Day to raise money for Asthma UK. I never imagined the amount of money it would raise but have been bowled over today when I learnt that over £6500… Continue reading There are some amazing people out there!!