Blog Posts

Drugs going out of stock in lockdown

aaaaaaaaaaahhhhh they are stopping making one of my drugs!!! A phone call from my pharmacist to tell me that they cannot get hold of one of my drugs is something no patient ever likes to hear let alone during lockdown and even less so when it is one of your allergy meds and you have… Continue reading Drugs going out of stock in lockdown

Disabled looks like me Campaign

"Disabled looks like me" campaign with Leonard Cheshire and Mimi ButlinĀ is very close to my heart for a number of reasons. The first one is that the aim of the campaign is to breakdown disability stereotypes. One thing I used to get really upset and angry about is being judged because I didn't look how… Continue reading Disabled looks like me Campaign

Digital health and tele-monitoring.

Living with asthma for over 30 years I have experienced a lot of different medication, types (and colours) of inhaler and ways of managing my asthma. The types of inhaler have gone varied from a metered dose inhaler with a nebuhaler (similar to the volumetric but longer and thinner), to the spin haler and rotahaler… Continue reading Digital health and tele-monitoring.

World Asthma Day 2020

I cant believe it was 365 days ago since the last World Asthma Day and 6 years since I really embarked on my journey into Patient and Public Involvement. I cant believe that when I did this newspaper article for World Asthma Day in 2014 I had no idea about where it would take me.… Continue reading World Asthma Day 2020

More ICU Flashbacks

I have written a lot over the years about my experience of being in ICU particularly the last admission to ICU which has really haunted me but I have managed to calm those terrors until now that is. It is really hard to get through your day without hearing or seeing something about corona virus… Continue reading More ICU Flashbacks

Reflecting (because every nurse loves a good reflection)

Did you know my blog has lasted longer than my nursing career did?? A failed career in Sports Science- well it was a career that never started thanks to my lungs resulted in me falling into nursing. I never thought I would be a nurse. If you were to ask people what I would end… Continue reading Reflecting (because every nurse loves a good reflection)

Another chapter ending in my life

"the uniform I love is the uniform that saves me and is killing me" has been a statement I have written many times over the years. I posted on social media a few weeks ago now to say that I would not be coming back to my job as a community dialysis nurse. I would… Continue reading Another chapter ending in my life

Corona Virus what does it mean for severe asthma?

Corona virus, COVID-19 or as I like to refer to it as "the virus" is the hot topic just now and rightly so especially as the World Health Organisation has just declared it to be a pandemic. I have not posted anything on facebook, instagram, twitter or my blog about the virus because everywhere is… Continue reading Corona Virus what does it mean for severe asthma?

You can disagree with your Dr, its called self advocating.

Yes Dr, I will take that as you prescribe despite the horrible side effects stopping me living my life. How often have you found yourself doing this? Do you know that you can speak up and disagree with your Dr or healthcare provider. In the UK when it comes to healthcare traditionally we are not… Continue reading You can disagree with your Dr, its called self advocating.

Is severe asthma different to asthma?

In my last blog post I mentioned how I met some other people with severe asthma at a BLF-AUK event where we had a conversation about asthma and severe asthma. It may have the same mechanisms in that it is a condition where the airways become inflamed and irritated causing difficulty breathing but here ends… Continue reading Is severe asthma different to asthma?