Last September I started the Severe Asthma Peer Support Group with the support of Asthma + Lung UK. Unfortunately this has not worked out so I am now running the group independently from Asthma + Lung UK. It was not an easy decision to make, and I had many sleepless nights thinking about what I… Continue reading Severe Asthma Peer Support Group
Mental Health Awareness
This week is mental health awareness week. Mental health is still such a stigmatised topic often leaving people feeling weak, vulnerable and embarrassed, some even fear what might happen if they acknowledge that they may be struggling with their mental health. I hear so often that people with a physical health condition worry about opening… Continue reading Mental Health Awareness
What is severe asthma really??
And what does severe asthma look like? Does having severe asthma look like this? Is this what severe asthma looks like? In all the photos above I have severe asthma (some of them are a lot older than others). In the top photos it doesn't look like there is anything wrong with me but the… Continue reading What is severe asthma really??
World Asthma Day 2023
Has anything really changed in the asthma landscape since World Asthma Day 2022? For the day to day living with asthma really not much has changed. The same frustrations are still there and sadly I think they will continue for many years. The has obviously been some positive changes especially with the approval of the… Continue reading World Asthma Day 2023
Psychological impact of medical gaslighting a year on
"There is no reason for your wound not to heal or keep getting infections. You must know something more about it that you are not telling us.....we will not offer you any further intervention with your wound" These were the words I heard from a Dr in April last year on the 21st to be… Continue reading Psychological impact of medical gaslighting a year on
A year on Omalizumab
I cant believe that it has been a year since I had my first injection of omalizumab also known as Xolair. I am on xolair for spontaneous idiopathic urticaria (hives) and angioedema (swelling), it also benefits my asthma as well although the dose I am on is higher than what I would be taking if… Continue reading A year on Omalizumab
Medic Alert- my security blanket
When it comes to my health I have a few security blankets one being my inhalers and the second my medic alert bracelet. When you live with a condition that can render you speechless it is a huge fear that I won't be able to tell anyone what is wrong with me if I need… Continue reading Medic Alert- my security blanket
Lung Health Lottery
Today Asthma + Lung Uk launched their campaign End the Lung Health Lottery. They have collected data which has been analysed and the results are shocking. Depending on where you live in the UK will depend on your lung health outcomes. If you live in an area of higher deprivation the higher the chance that… Continue reading Lung Health Lottery
Edinburgh Giants Wheelchair Rugby League
Even though I have only been to one training session I have fallen in love with the sport of wheelchair rugby league and Edinburgh Giants. Being part of something again fills me with so much joy and hope. Even just writing this so far I feel buoyed up thinking that it is only 2 days… Continue reading Edinburgh Giants Wheelchair Rugby League
What is an inhaler swap?
It has been so concerning recently to see so many posts where people are really angry and say they have had an inhaler swap. When you explore a little bit more you find out that it is not actually an inhaler swap. We all have our preferred device, and brand of medication which can differ… Continue reading What is an inhaler swap?