Blog Posts

Too many ideas….dont know where too start

Right now I have so many blog ideas but I have no idea which one to start with and how to get them all done. I sit down to write one and I get an idea for another or a note I need to write down for another blog I have started and want to… Continue reading Too many ideas….dont know where too start

PIP Change in Circumstances

PIP or Personal Independent Payments is the UK's disability payment scheme for those who's life is affected by their chronic condition. I wrote a few years ago about the different stages of the PIP application process which can be found here: Stage 1, Stage 2, and Stage 3. These posts were written back in 2017… Continue reading PIP Change in Circumstances

Shielding- our path out of lockdown.

A text saying Nicola Sturgeon is making an announcement regarding shielding at 12:30pm today 8th June filled me with excitement but also dread. As a Scot I have watched those living in England go on a huge rollercoaster and then be put in a blender. I don't think anyone in the shielding category in England… Continue reading Shielding- our path out of lockdown.

Drugs going out of stock in lockdown

aaaaaaaaaaahhhhh they are stopping making one of my drugs!!! A phone call from my pharmacist to tell me that they cannot get hold of one of my drugs is something no patient ever likes to hear let alone during lockdown and even less so when it is one of your allergy meds and you have… Continue reading Drugs going out of stock in lockdown

Disabled looks like me Campaign

"Disabled looks like me" campaign with Leonard Cheshire and Mimi ButlinĀ is very close to my heart for a number of reasons. The first one is that the aim of the campaign is to breakdown disability stereotypes. One thing I used to get really upset and angry about is being judged because I didn't look how… Continue reading Disabled looks like me Campaign

Digital health and tele-monitoring.

Living with asthma for over 30 years I have experienced a lot of different medication, types (and colours) of inhaler and ways of managing my asthma. The types of inhaler have gone varied from a metered dose inhaler with a nebuhaler (similar to the volumetric but longer and thinner), to the spin haler and rotahaler… Continue reading Digital health and tele-monitoring.

World Asthma Day 2020

I cant believe it was 365 days ago since the last World Asthma Day and 6 years since I really embarked on my journey into Patient and Public Involvement. I cant believe that when I did this newspaper article for World Asthma Day in 2014 I had no idea about where it would take me.… Continue reading World Asthma Day 2020

More ICU Flashbacks

I have written a lot over the years about my experience of being in ICU particularly the last admission to ICU which has really haunted me but I have managed to calm those terrors until now that is. It is really hard to get through your day without hearing or seeing something about corona virus… Continue reading More ICU Flashbacks

Reflecting (because every nurse loves a good reflection)

Did you know my blog has lasted longer than my nursing career did?? A failed career in Sports Science- well it was a career that never started thanks to my lungs resulted in me falling into nursing. I never thought I would be a nurse. If you were to ask people what I would end… Continue reading Reflecting (because every nurse loves a good reflection)

Another chapter ending in my life

"the uniform I love is the uniform that saves me and is killing me" has been a statement I have written many times over the years. I posted on social media a few weeks ago now to say that I would not be coming back to my job as a community dialysis nurse. I would… Continue reading Another chapter ending in my life