Surprisingly I never used to be vocal. 5 years ago I used to much rather sit in a room, listen and not participate. I felt like I had no right to contribute to the conversation because who was I. I was just a patient, a person who lived with a chronic health condition, but I… Continue reading Confidence in your own voice
7 years ago I had the privilege of being invited to join the Asthma UK Centre for Applied Research (AUKCAR). At the time I had no idea what I was getting in to. I had no idea what patient and public involvement (PPI) in research was and to be honest was a little daunted at… Continue reading Leaving the Asthma UK Centre for Applied Research
World Delirium Day- 17th March 2021 Delirium is a serious disturbance in mental abilities that results in confused thinking and reduced awareness of the environment. Delirium is rarely spoken about. Many people can feel ashamed because of the delirium they experienced due to the memories they have. There is often the perception that if you are… Continue reading ‘Forgetting difficult hospital admissions but then being haunted by memories and not being able to put them together and make sense of them all’
The following blog post was shared on the Asthma UK Centre for Applied Research website. I was so privileged to speak at the Lung Health Cross Party Group meeting at the Scottish Parliament. I spoke about digital health and how I have integrated smart technology in my life. "Following her presentation to the Scottish Parliament… Continue reading Discussing smart technology for asthma self-management at the Lung Health Cross Party Group at the Scottish Parliament
The patient voice is becoming such a valuable asset to medicine, medical research, pharma development and medical conferences. After all you can learn all the technical stuff about the anatomy and physiology in text books but you can never learn just what it is like to live with a certain condition unless you go through… Continue reading Attending (online) conferences as a patient.
Patient advocates seem to give off this impression of being fearless, great speakers and always knowing the right thing to say. I often looked patient advocates and admired their confidence and strength for the work they do. I still do. It has only been in the last few years that I have really identified as… Continue reading Worries of being a patient advocate
It must have been fate that today was the day to write this blog post. My time hop reminded me that is was 4 years ago since I was in Florida with the Scotland Lacrosse Senior Women's Team. Before I looked at my time hop I had been structuring this blog post in my head… Continue reading Closing the chapter on my time in Lacrosse
It seems the entire country (I mean all 4 Scotland, England, Wales and Northern Ireland as well as Ireland) are waiting with baited breath as to when everyone will get vaccinated. Everyone will get the vaccine in time but we just need to be patient. We have managed this long we can manage a little… Continue reading COVID-19 Vaccine
I have had a Key Information Summary (KIS) on my notes for a number of years and until today I have always taken it for granted. For me it is something that has always been and I just assumed that it was something that everyone with a chronic health condition had. Today at an Asthma… Continue reading Key Information Summary for those chronic health
The world is full of negativity just now due to the COVID-19 pandemic. It is naturally a scary time with uncertainty about what the future holds. We don't have the ability to plan going forward as no one knows when the restrictions we have in place will be lifted. Normally around this time of year… Continue reading Let’s Get Positive!!