an insight into my life with severe asthma, advocacy, awareness & research
I am so excited, I cannot contain myself!! Yesterday a smoking ban on NHS hospital sites came into force. This new law means that no one on a NHS hospital site can smoke within 15m of a hospital building and cannot smoke under any overhangs of buildings either. This law is enforceable and people who… Continue reading Smoking Ban on NHS Hospital sites comes into force
Severe asthma is a complex disease that impacts every aspect of a persons life. I have lived with asthma almost all of my life and severe asthma for over half of it too, even before it was classed as severe it was always hard to control. There is not one aspect of my life that… Continue reading Severe Asthma Peer Support Group
The covid fairy finally paid me a visit a few weeks ago. Postive Lateral Flow Test and a High temp (not the highest it hit) Having avoided it for the last 2 and a half years I knew my time would come but I had no idea when. Not long into the first national lockdown… Continue reading My COVID-19 Experience
Its no secret that recently I have had a lot of trouble with my health and the health service. I have found myself in the position where I am not sure who I can or cannot trust especially those who have been looking after me. It is a position I never expected to find myself… Continue reading Trust
After years of struggling with what I thought was only allergies I was formally diagnosed with spontaneous idiopathic urticaria and angioedema (I will refer to it as urticaria from here as it is a mouthful and a lot to write over and over). I wrote a blog post about it a few months ago, it… Continue reading Being on Biologics for Spontaneous Idiopathic Urticaria and Angioedema
Medical gaslighting is a term that I have seen around on social media quite a bit over the last year or so. I would read stories about patients experiences of poor medical care or incorrect assumptions made by medics which have been devastating for the patient and feel blessed that this has never happened to… Continue reading Medical Gaslighting
Did you know women are twice as likely to die from asthma than men are? Living with asthma is horrible. To keep it stable there are so many considerations you need to think about compared to someone without asthma. For me my mind is always racing and I am checking my surroundings to make sure… Continue reading Women with asthma
On Tuesday evening I attended one of my first face to face events since the COVID-19 pandemic started. I cannot begin to explain how good it was to be back at an in person event. A few months ago the rebranding of the Asthma UK and British Lung Foundation Partnership was unveiled. Along with new… Continue reading A New Vision for Lung Health
Normally I would be excited and shouting from the rooftops that there has been a segment dedicated to asthma on a very popular morning TV show. Not this time, quite the opposite. Everyone in the asthma field (patients, clinicians, pharmacists, industry, pharma as well as many more) has been left stunned and in utter disbelief… Continue reading Horrified watching incorrect asthma advice on daytime TV
Finally I have a formal diagnosis of spontaneous idiopathic urticaria for the allergic type symptoms I have been experiencing and unable to control despite multiple different types of anti histamines, anti leukotriene receptors, histamine-1 blockers and oral corticosteroids. The outbreaks of hives and associated itching as well as angioedema can often be debilitating and leave… Continue reading Spontaneous Idiopathic Urticaria
ANONYMOUS-ASTHMA 