I was recently at the first event since the partnership of Asthma UK and the British Lung Foundation. It was fantastic to see BLF colleagues with the Asthma UK logo on their name badges alongside the BLF logo. Also being welcomed with open arms too was lovely. I was a bit daunted to attend this… Continue reading BLF-AUK Respiratory Action Plan Meeting
and how does it differ around the world?? Last April I was in Dallas Texas attending the HealthEvoices (HeV) meeting. A meeting for health advocates to meet and learn from each other. I went out there thinking I knew what health advocacy was but I was wrong to some extent. A while back I put… Continue reading Being a Health Advocate
Hero, warrior, asthmatic, advocate, inspiration, strong are just some of the words I have had people refer to me as recently. While I really appreciate them and am flattered I feel uncomfortable hearing them. Some adjectives I can learn to adapt to such as advocate but others not so much. The word health advocate a… Continue reading What words describe you?
Ask for help. Living with a long term health condition comes with many challenges especially when it is a condition that comes with unpredictability and triggers out with your own control. The challenge of trying to live a normal life is tiring and it can feel like a full time job just trying to stay… Continue reading What do you do when it all gets a little too much?
I am not actually sure what title to give this post. I was recently in a consultation type meeting with a range of service users to discuss the nursing program at one of the universities in Edinburgh. They are being revalidated and want to make sure that the course is producing the best possible nurses… Continue reading Getting medication on time.
Back on 10th December the news hit the headlines that Asthma UK are to merge with the British Lung Foundation (BLF). It was met online with mixed reviews particularly by fellow asthmatics. I think there was a concern that asthma as a condition might get lost because the BLF covers such a wide range of… Continue reading The Asthma UK and British Lung Foundation Partnership
or at least we think it is. Otherwise it is just my body being weirder then it already is. After over a decade of being on oral steroids I thought I had come across most of the side effects. I have not experienced all of them but have heard of them or at least I… Continue reading One of the more unusual side effects of prednisilone
With the new year fast approaching I like to reflect back on how the year has been and what I have achieved. Last years post can be found here . My thought for 2019 was: 2019 is going to be a great year, a year to focus on achieving the best health I can and enjoy… Continue reading 2019 the good, the bad & the ugly
My social media platforms have been filled over the last few days with posts about HealtheVoices. The application deadline has been and gone. Yesterday people received their emails saying that they were accepted to HeV20 or were waitlisted or did not get in at all. It fills me with joy and sadness. Sadness because I… Continue reading Friendships from HealtheVoices
How did I end up with 6 other conditions plus just from one medication I take for severe asthma. The scary thing is I am not alone. This word cloud represents all the conditions a small selection of people have as a result of severe asthma. I asked a support group on social media as… Continue reading Did you know severe asthma is way more than only severe asthma??