an insight into my life with severe asthma, advocacy, awareness & research
Severe asthma is a complex disease that impacts every aspect of a persons life. I have lived with asthma almost all of my life and severe asthma for over half of it too, even before it was classed as severe it was always hard to control. There is not one aspect of my life that… Continue reading Severe Asthma Peer Support Group
In my last blog post I mentioned how I met some other people with severe asthma at a BLF-AUK event where we had a conversation about asthma and severe asthma. It may have the same mechanisms in that it is a condition where the airways become inflamed and irritated causing difficulty breathing but here ends… Continue reading Is severe asthma different to asthma?
I get my medication each week in a dosette box made up by my local pharmacist. I take so many medications that when I am not well I find it hard to work out what I have taken and what I still need to take. I now don't need to think about what I take,… Continue reading Chronic Pain with Chronic Illness
One thing I have found since starting mepolizumab is I am constantly questioning myself and am almost preoccupied thinking about what results I may see and how my asthma will improve. Its hard because with this drug unlike others there is no knowing when you will start getting the benefits and if you will get… Continue reading When is it going to start working??
In March/April for me my asthma care hit a wall and I could no longer continue as I was. Despite my consultant being one of the best in the field of difficult to control asthma I was getting no where, I was feeling lost, totally out of control and no idea what I was doing… Continue reading New horizons- not knowing how to feel!
I have written often about being admitted to intensive care or the high dependancy unit or being reviewed by critical care staff and it always something I have just sort of dealt with and not thought to much more about it. That was until last night. I couldn't sleep for tossing and turning thinking about… Continue reading The Intensive Care Unit
Being on sick leave seems to be an all too common occurrence for me. It is never just a day either its weeks and weeks which feels like months and months (well sometimes it is months). Often people say to me they would love to be off for as long as I have been off… Continue reading Sick leave- what do you do??
Reading the BBC news online I came across an article about cleaning products and lung health. A study carried out in Norway found that using a micro fibre cloth and water was suitable for most purposes rather than the products full of chemicals which advertise themselves as killing 99.9% of all bacteria etc. Cleaning particularly house… Continue reading Cleaning products and lung health
Since getting things back on track with work etc I have realised I need to make some tough choices and prioritise what I need to do versus what I want to do. In 2015 I had the best summer volunteering and recording statistics at the U19 World Lacrosse Championships. 2 weeks of full on lacrosse… Continue reading Making tough choices
2016 has been a pretty awful year. There have been highs but there has also been some mega low points so like much of the world I am looking forward to 2017 and to it being better than this year has been. January, I guess the start of the year set it off, after being… Continue reading 2016 Round Up!
ANONYMOUS-ASTHMA 