an insight into my life with severe asthma, advocacy, awareness & research
Last month saw the rebranding of the Asthma UK and British Lung Foundation Partnership. It has been rebranded and is now Asthma + Lung UK. Evolution is sometimes scary and can be uncertain but there is often so many positive things that come from it, my perspective is that this has continually happened in the… Continue reading Experiencing the evolution of an asthma charity in the UK
Chronic illness takes so much away from you. It can leave you unable to hold down a job and therefore no monthly income reliant on benefits but more than that it robs you of your ability to socialise. The catalyst for the post was a photo that came up on my TimeHop memories when I… Continue reading The value of volunteering when chronically ill.
The patient voice is becoming such a valuable asset to medicine, medical research, pharma development and medical conferences. After all you can learn all the technical stuff about the anatomy and physiology in text books but you can never learn just what it is like to live with a certain condition unless you go through… Continue reading Attending (online) conferences as a patient.
And how to keep them happy and feeling valued. Hi, My name is Mark Hudson, You probably have no idea who I am, that’s ok I’d be surprised if you did. Olivia and I met in August of 2018 at an ICU steps Edinburgh event, Creativity in ICU recovery, it was my first speaking event.… Continue reading Guest blog post: Why being a Volunteer is Important in healthcare?
The first week of annual leave I really felt a little bit of a mess and just didnt know what to do with myself and everything seemed really negative and falling apart around me, but a week in and half way through my annual leave I feel things are starting to get back together and… Continue reading Taking time helps to heal
Since getting things back on track with work etc I have realised I need to make some tough choices and prioritise what I need to do versus what I want to do. In 2015 I had the best summer volunteering and recording statistics at the U19 World Lacrosse Championships. 2 weeks of full on lacrosse… Continue reading Making tough choices
ANONYMOUS-ASTHMA 