Medical gaslighting is a term that I have seen around on social media quite a bit over the last year or so. I would read stories about patients experiences of poor medical care or incorrect assumptions made by medics which have been devastating for the patient and feel blessed that this has never happened to… Continue reading Medical Gaslighting
Normally I would be excited and shouting from the rooftops that there has been a segment dedicated to asthma on a very popular morning TV show. Not this time, quite the opposite. Everyone in the asthma field (patients, clinicians, pharmacists, industry, pharma as well as many more) has been left stunned and in utter disbelief… Continue reading Horrified watching incorrect asthma advice on daytime TV
On my social media I have recently been posting about the fear and anxiety I have been trying to deal with. I have discovered that I am not the only one who is having the same experience. This is reassuring as it says to me that my fear is justified but it is awful that… Continue reading Living with fear and anxiety
Clinicians showing vulnerability and learning from patients is so refreshing. This is my recent experience which I wanted to share as I hope it will allow patients to understand clinicians but also hope that any clinicians reading this will understand what is important to us as patients. My involvement in the Severe Heterogenous Asthma Research… Continue reading Patient Aims vs Clinician Aims when managing long term conditions
World Delirium Day- 17th March 2021 Delirium is a serious disturbance in mental abilities that results in confused thinking and reduced awareness of the environment. Delirium is rarely spoken about. Many people can feel ashamed because of the delirium they experienced due to the memories they have. There is often the perception that if you are… Continue reading ‘Forgetting difficult hospital admissions but then being haunted by memories and not being able to put them together and make sense of them all’
Perspectives of being a younger person in the Intensive Care Unit. Over the years I written about my experiences in ICU in a very factual manner but I have never really spoken about the true impact it has had on me and even now I don't really tell people all the details of some things.… Continue reading ICUsteps Webinar
I love speaking to medical students and student nurses. Even before I was a nurse I knew the importance of helping educate all the students wanting to go into the healthcare profession. Today I was interviewed by a couple of first year medical students. It was great to speak to them but I felt so… Continue reading Importance of helping the next generation of Drs and Nurses
When I woke from the coma and not being able to feel my leg never did I think that a year on there would be no improvement. To be honest I don't think the medics thought it was anything more than temporary too. Over the year I have experienced a lot of different emotions and… Continue reading A year on from that fateful day.
How do you get from Fearnan to Perth in 30 minutes and Perth to Dundee in 15 minutes. A blue lighted ambulance!! (This might be a bit of a long one but I need to get it down on paper so to speak) With severe asthma you think you have experienced everything when it comes… Continue reading Experiencing a new hospital!
In my last blog post I mentioned how I met some other people with severe asthma at a BLF-AUK event where we had a conversation about asthma and severe asthma. It may have the same mechanisms in that it is a condition where the airways become inflamed and irritated causing difficulty breathing but here ends… Continue reading Is severe asthma different to asthma?