Patient Aims vs Clinician Aims when managing long term conditions

Clinicians showing vulnerability and learning from patients is so refreshing. This is my recent experience which I wanted to share as I hope it will allow patients to understand clinicians but also hope that any clinicians reading this will understand what is important to us as patients. My involvement in the Severe Heterogenous Asthma Research… Continue reading Patient Aims vs Clinician Aims when managing long term conditions

‘Forgetting difficult hospital admissions but then being haunted by memories and not being able to put them together and make sense of them all’

World Delirium Day- 17th March 2021 DeliriumĀ is a serious disturbance in mental abilities that results in confused thinking and reduced awareness of the environment. Delirium is rarely spoken about. Many people can feel ashamed because of the delirium they experienced due to the memories they have. There is often the perception that if you are… Continue reading ‘Forgetting difficult hospital admissions but then being haunted by memories and not being able to put them together and make sense of them all’

ICUsteps Webinar

Perspectives of being a younger person in the Intensive Care Unit. Over the years I written about my experiences in ICU in a very factual manner but I have never really spoken about the true impact it has had on me and even now I don't really tell people all the details of some things.… Continue reading ICUsteps Webinar

Importance of helping the next generation of Drs and Nurses

I love speaking to medical students and student nurses. Even before I was a nurse I knew the importance of helping educate all the students wanting to go into the healthcare profession. Today I was interviewed by a couple of first year medical students. It was great to speak to them but I felt so… Continue reading Importance of helping the next generation of Drs and Nurses

A year on from that fateful day.

When I woke from the coma and not being able to feel my leg never did I think that a year on there would be no improvement. To be honest I don't think the medics thought it was anything more than temporary too. Over the year I have experienced a lot of different emotions and… Continue reading A year on from that fateful day.

Experiencing a new hospital!

How do you get from Fearnan to Perth in 30 minutes and Perth to Dundee in 15 minutes. A blue lighted ambulance!! (This might be a bit of a long one but I need to get it down on paper so to speak) With severe asthma you think you have experienced everything when it comes… Continue reading Experiencing a new hospital!

Is severe asthma different to asthma?

In my last blog post I mentioned how I met some other people with severe asthma at a BLF-AUK event where we had a conversation about asthma and severe asthma. It may have the same mechanisms in that it is a condition where the airways become inflamed and irritated causing difficulty breathing but here ends… Continue reading Is severe asthma different to asthma?

Getting medication on time.

I am not actually sure what title to give this post. I was recently in a consultation type meeting with a range of service users to discuss the nursing program at one of the universities in Edinburgh. They are being revalidated and want to make sure that the course is producing the best possible nurses… Continue reading Getting medication on time.

One of the more unusual side effects of prednisilone

or at least we think it is. Otherwise it is just my body being weirder then it already is. After over a decade of being on oral steroids I thought I had come across most of the side effects. I have not experienced all of them but have heard of them or at least I… Continue reading One of the more unusual side effects of prednisilone

2019 the good, the bad & the ugly

With the new year fast approaching I like to reflect back on how the year has been and what I have achieved. Last years post can be found hereĀ . My thought for 2019 was: 2019 is going to be a great year, a year to focus on achieving the best health I can and enjoy… Continue reading 2019 the good, the bad & the ugly