an insight into my life with severe asthma, advocacy, awareness & research
Just now I feel like a swan in a pond. Everything looks ok on the outside but under the water it can be furiously paddling to stay a float. In January 2022 when I developed the urachal cyst never did I envision what has unfolded let alone still be battling 14 months later. I am… Continue reading Floundering a little
If I had to be honest I was not sure what I thought would be the outcome of the Stakeholder Board Meeting for SHARP an ERS Clinical Research Collaboration. During my time as a patient involved in research I have been to many meetings, board meetings, scientific meetings and each time gone into the meeting… Continue reading An inspiring few days at the SHARP Stakeholder Board Meeting
A lot of the work I do is speaking to people about what it is like to live with asthma. Asthma is a condition that you should be able to live with and it won't interfere too much but for so many people asthma dictates their life. It is so important for those who work… Continue reading Bringing the patient voice to Research and Development
I was recently at the first event since the partnership of Asthma UK and the British Lung Foundation. It was fantastic to see BLF colleagues with the Asthma UK logo on their name badges alongside the BLF logo. Also being welcomed with open arms too was lovely. I was a bit daunted to attend this… Continue reading BLF-AUK Respiratory Action Plan Meeting
ANONYMOUS-ASTHMA 