Medical Gaslighting

Medical gaslighting is a term that I have seen around on social media quite a bit over the last year or so. I would read stories about patients experiences of poor medical care or incorrect assumptions made by medics which have been devastating for the patient and feel blessed that this has never happened to… Continue reading Medical Gaslighting

Women with asthma

Did you know women are twice as likely to die from asthma than men are? Living with asthma is horrible. To keep it stable there are so many considerations you need to think about compared to someone without asthma. For me my mind is always racing and I am checking my surroundings to make sure… Continue reading Women with asthma

A New Vision for Lung Health

On Tuesday evening I attended one of my first face to face events since the COVID-19 pandemic started. I cannot begin to explain how good it was to be back at an in person event. A few months ago the rebranding of the Asthma UK and British Lung Foundation Partnership was unveiled. Along with new… Continue reading A New Vision for Lung Health

Horrified watching incorrect asthma advice on daytime TV

Normally I would be excited and shouting from the rooftops that there has been a segment dedicated to asthma on a very popular morning TV show. Not this time, quite the opposite. Everyone in the asthma field (patients, clinicians, pharmacists, industry, pharma as well as many more) has been left stunned and in utter disbelief… Continue reading Horrified watching incorrect asthma advice on daytime TV

Spontaneous Idiopathic Urticaria

Finally I have a formal diagnosis of spontaneous idiopathic urticaria for the allergic type symptoms I have been experiencing and unable to control despite multiple different types of anti histamines, anti leukotriene receptors, histamine-1 blockers and oral corticosteroids. The outbreaks of hives and associated itching as well as angioedema can often be debilitating and leave… Continue reading Spontaneous Idiopathic Urticaria

Experiencing the evolution of an asthma charity in the UK

Last month saw the rebranding of the Asthma UK and British Lung Foundation Partnership. It has been rebranded and is now Asthma + Lung UK. Evolution is sometimes scary and can be uncertain but there is often so many positive things that come from it, my perspective is that this has continually happened in the… Continue reading Experiencing the evolution of an asthma charity in the UK

Going green with inhalers…..

If you are on social media and follow some people in the asthma world you will see that this seems to be a big topic. You will also more than likely see this image: Ventolin Evohaler vs Ventolin Accuhaler The humble Ventolin Evohaler pMDI (pressurised metered dose inhaler) or puffer is taking a huge amount… Continue reading Going green with inhalers…..

Self Management- how does it feel when you can’t.

With severe asthma or actually any type of asthma or chronic health condition one of the biggest parts of living with it is self management. We are (hopefully) taught how to manage living with our condition, take action when things don't go quite right. We are pretty much left to our own devices. Day to… Continue reading Self Management- how does it feel when you can’t.

Emergency Surgery and Normalising Hospital Admissions

For those who follow me on social media will be aware that I recently had to be admitted to hospital for emergency abdominal surgery. Of course I was shocked at the prospect of needing surgery and the speed at which everything happened but looking back on it I realised I have totally normalised going into… Continue reading Emergency Surgery and Normalising Hospital Admissions

The value of volunteering when chronically ill.

Chronic illness takes so much away from you. It can leave you unable to hold down a job and therefore no monthly income reliant on benefits but more than that it robs you of your ability to socialise. The catalyst for the post was a photo that came up on my TimeHop memories when I… Continue reading The value of volunteering when chronically ill.