The world is full of negativity just now due to the COVID-19 pandemic. It is naturally a scary time with uncertainty about what the future holds. We don't have the ability to plan going forward as no one knows when the restrictions we have in place will be lifted. Normally around this time of year… Continue reading Let’s Get Positive!!
I have written before about my disgust of the way inhalers and asthma are portrayed in the media. I wish I could wave a magic wand and it would all be corrected so that it was not just the geeky fat kids showed with asthma but anyone could have asthma, and also the way inhalers… Continue reading Changing the way inhalers are used in the media.
Today is the anniversary of my Granny's death and my Uncle's. I have many stories about my Granny which make me laugh and make me cry but today I wanted to share a few of those here. Granny during her birthday celebration when we made her try beer that my Dad was involved in. It… Continue reading Remembering my Granny
No one likes pain and I mean physical pain. We do what we can to limit ourselves from getting pain or alleviate the pain we feel. A pain word cloud with some of the terms I would use to describe my life with chronic pain (taken from google) I have lived with chronic pain related… Continue reading Pain Management Appointment
Watch the webinar I took part in for ICUsteps. I spoke about my experience of being a young person in ICU.
I am really proud to have become a Cochrane Consumer Champion. Without sounding cliche I never imagined "my journey" in patient and public involvement (PPI) with the Asthma UK Centre for Applied Research would take me to where I am now. What started as reviewing a few patient information sheets has led to being a… Continue reading Cochrane Consumer Champion
2020 has been a really challenging year for everyone. After the initial worry of COVID-19 was over I then started to think about what I would do while we waited for the pandemic to be over. The government advised those classed as clinically extremely vulnerable to shield and protect ourselves from the virus. Shielding meant… Continue reading Doing PPI Virtually
Perspectives of being a younger person in the Intensive Care Unit. Over the years I written about my experiences in ICU in a very factual manner but I have never really spoken about the true impact it has had on me and even now I don't really tell people all the details of some things.… Continue reading ICUsteps Webinar
Are we ever happy with how we look? As a species it seems we are always looking for ways to improve our bodies wether it is our weight, physique, hair you name it there is probably a method out there to help you try and achieve what you are looking for. Even if you think… Continue reading Medication vs Body Image
I recently read a blog post by Sally Crowe, who wrote about how her mental health was impacted after going through cancer treatment. She was diagnosed with cancer related post traumatic stress (you can read the blog post here). Sally chose this image: “Gardening as a metaphor for ‘tending trauma’, and learning to live alongside… Continue reading “I can only please one person at a time. Today I choose me”