an insight into my life with severe asthma, advocacy, awareness & research
When it comes to my health I have a few security blankets one being my inhalers and the second my medic alert bracelet. When you live with a condition that can render you speechless it is a huge fear that I won't be able to tell anyone what is wrong with me if I need… Continue reading Medic Alert- my security blanket
Today 10th October 2022 is World Mental Health Day. I was asked to give a brief talk during the event Living Well: Emotional Support Matters hosted by The Health and Social Care Alliance (Scotland). My talk was titled: Benefits of using your own experience to call for change. This blog post is roughly what I… Continue reading Mental Health Benefits From Using My Patient Voice
I am well aware I have neglected my blog and there have been no posts for sometime. I have sat down so many times to try and write but just nothing comes out. If I am honest I have been struggling a lot over the past 4-5 months. I feel lost in myself and couldn't… Continue reading Finding my Positive Mental Attitude
I have had a Key Information Summary (KIS) on my notes for a number of years and until today I have always taken it for granted. For me it is something that has always been and I just assumed that it was something that everyone with a chronic health condition had. Today at an Asthma… Continue reading Key Information Summary for those chronic health
"Disabled looks like me" campaign with Leonard Cheshire and Mimi Butlin is very close to my heart for a number of reasons. The first one is that the aim of the campaign is to breakdown disability stereotypes. One thing I used to get really upset and angry about is being judged because I didn't look how… Continue reading Disabled looks like me Campaign
Hero, warrior, asthmatic, advocate, inspiration, strong are just some of the words I have had people refer to me as recently. While I really appreciate them and am flattered I feel uncomfortable hearing them. Some adjectives I can learn to adapt to such as advocate but others not so much. The word health advocate a… Continue reading What words describe you?
I am not actually sure what title to give this post. I was recently in a consultation type meeting with a range of service users to discuss the nursing program at one of the universities in Edinburgh. They are being revalidated and want to make sure that the course is producing the best possible nurses… Continue reading Getting medication on time.
Last night I had a totally new experience. I was a guest on a radio show. I have done radio interviews before but they have never been in a radio studio with the headphones etc on so this was all a bit new and exciting! To listen to the show follow this link SoulKraft Wellbeing… Continue reading SoulKraft Wellbeing Radio Show 10.07.19
ANONYMOUS-ASTHMA 