an insight into my life with severe asthma, advocacy, awareness & research
Recently on social media I have become so aware that many with asthma do not have the essential tools they need to enable them to manage their asthma effectively and live a life where asthma does not impede their daily routine. 1. Personal Asthma Action Plan (PAAP) or action plan for short. This is essential… Continue reading Essentials for Good Asthma Management
I can't believe it is a year since I started on mepolizumab (mepo) a monoclonal anti body treatment to suppress my eosinophils in a bid to help my asthma. The big question is as it helped? I am not sure. My consultant seems to think it has and I am to continue on it. My… Continue reading A year on monoclonal antibody treatment
It is well known that pollution makes asthma worse. There has been a lot of information in the press about this and how there needs to be low emission zones in major cities to try and increase the air quality. Recently an inquest ruled that the death of a young girl from asthma was due… Continue reading Pollution and its effect on my asthma
Having a conversation with a friend this evening and I was so shocked to hear about her recent experience being diagnosed with asthma. A prolonged cough, wheezing and breathlessness the GP was unable to get on top of things so she was referred on to the hospital to see what was going on. Lung function… Continue reading Getting it right for a newly diagnosed asthmatic.
It has been a busy few weeks with a number of trips down to London. Last year when I had a few trips to London there was a clear deterioration in my asthma when I was there. My peak flow dropped substantially and I was constantly feeling tight, wheezy and just couldn't get my breath… Continue reading Getting over the stigma of wearing a mask in public!
One thing I have found since starting mepolizumab is I am constantly questioning myself and am almost preoccupied thinking about what results I may see and how my asthma will improve. Its hard because with this drug unlike others there is no knowing when you will start getting the benefits and if you will get… Continue reading When is it going to start working??
On Tuesday 1st May is was World Asthma Day. I normally do something during the day, or post a video etc raising awareness about asthma, how serious it is, how critically under funded research into asthma is. This year however I didnt do anything I just wasn't well enough, my chest was far from good… Continue reading World Asthma Day
Living with any chronic health condition can be tricky. Not only dealing with how you are feeling on a daily basis but everything that goes with it to keep yourself well- the medication, self management plans, anticipatory care plan, Drs appointments, hospital appointments. This is just a small selection of some of the things you… Continue reading My Fight Against Asthma- the app
Nothing like the sun newspaper to come up with a good headline: I may not be totally accurate in my view that for a long time asthma was a bit of a buzz word within the medical world. From reading and talking to different people it appeared that often people would go to their… Continue reading Botched asthma diagnosis…
This is something that I wouldn't say bugs me but it is a gripe. When I go to have my asthma review with my health centre (which I think is a waste of time- because not wanting to be big headed but I end up teaching them more about asthma than they tell me!!!) But to the point. They always tick… Continue reading Inhaler Technique
ANONYMOUS-ASTHMA 