Living with asthma for over 30 years I have experienced a lot of different medication, types (and colours) of inhaler and ways of managing my asthma. The types of inhaler have gone varied from a metered dose inhaler with a nebuhaler (similar to the volumetric but longer and thinner), to the spin haler and rotahaler… Continue reading Digital health and tele-monitoring.
I was asked to write this blog post by Asthma UK as their report about severe and difficult asthma has just been published and the statistics are shocking. Asthma is not taken seriously or respected, some people don't take their medication as they are meant to for a variety of reasons but this can be… Continue reading Severe asthma- family and friends misconceptions.
I can't believe it is a year since I started on mepolizumab (mepo) a monoclonal anti body treatment to suppress my eosinophils in a bid to help my asthma. The big question is as it helped? I am not sure. My consultant seems to think it has and I am to continue on it. My… Continue reading A year on monoclonal antibody treatment
It is well known that pollution makes asthma worse. There has been a lot of information in the press about this and how there needs to be low emission zones in major cities to try and increase the air quality. Recently an inquest ruled that the death of a young girl from asthma was due… Continue reading Pollution and its effect on my asthma
Today was a big day for many Scottish people living with severe asthma. Many of us live day to day taking medications that do not fully help relieve our asthma symptoms and keep our asthma under control. It can be very frustrating and scary to live day to day not knowing how you will be.… Continue reading SMC approves Benralizumab (Fasenra)
Asthma has been in the news a lot recently, most of this has been reports on how awful the asthma care is for those with asthma in the UK. It is not all negative and there has been the odd positive bit of reporting such as new drugs being developed or gaining approval for use… Continue reading Asthma in the news
Having had asthma basically all my life one thing I have come to realise is the importance of your relationship with your GP or asthma nurse. For many they are the front line for you and your asthma care. I am so fortunate to have a GP who is really understanding and although she finds… Continue reading Having the support of your GP or Asthma Nurse
I haven't written in ages and I apologise for that but I really did not know what to write and how to write without getting myself angry and upset as I feel the last 8 years have just been a total waste. I wrote a while back about changing consultant and hospital because I was… Continue reading New drugs, new start?
On Tuesday 1st May is was World Asthma Day. I normally do something during the day, or post a video etc raising awareness about asthma, how serious it is, how critically under funded research into asthma is. This year however I didnt do anything I just wasn't well enough, my chest was far from good… Continue reading World Asthma Day