What do you do when it all gets a little too much?

Ask for help. Living with a long term health condition comes with many challenges especially when it is a condition that comes with unpredictability and triggers out with your own control. The challenge of trying to live a normal life is tiring and it can feel like a full time job just trying to stay… Continue reading What do you do when it all gets a little too much?

What do you do when you have a bad or good travelling experience when you have a disability?

I have been very lucky that despite my asthma I have been able to travel (mainly to attend conferences). I have travelled via a variety of different methods: train, plane and taxis. Thanks to the hidden disability lanyard I have been very fortunate in the treatment I have received in airports. I have also been… Continue reading What do you do when you have a bad or good travelling experience when you have a disability?

It’s ok to not be ok.

This past week has been really tough. Asthma is one of those conditions that is on a spectrum. Going from those with the mildest of asthma to those with the most severe and life threatening asthma you get everyone across the board and you can not pick out the one person with mild and the… Continue reading It’s ok to not be ok.

2nd dose of Mepolizumab in the bag

Thats the second dose of mepolizumab done and dusted. Now to wait till next month for my next injection next month. So many people have been asking me how I feel and if the new drug is helping or making a difference, or ask me when I will start noticing the benefits. Its really hard… Continue reading 2nd dose of Mepolizumab in the bag