I can't believe it is a year since I started on mepolizumab (mepo) a monoclonal anti body treatment to suppress my eosinophils in a bid to help my asthma. The big question is as it helped? I am not sure. My consultant seems to think it has and I am to continue on it. My… Continue reading A year on monoclonal antibody treatment
Blog Posts
Are asthmatics who post on social media one reason why asthma is considered as “just asthma”?
How often do we read or hear that asthma is "just asthma" and an inhaler will fix it all. Everyone knows someone who has asthma but not everyone knows how bad asthma can be and that it kills people. 3 people die each day in the UK compared to the 10 across the United States.… Continue reading Are asthmatics who post on social media one reason why asthma is considered as “just asthma”?
What do you do on days when there is no air??
Today has been one of those days where it feels like there is no air. You are left gasping for breath just moving a few meters and even sitting still feels like you are trying to breathe through a pillow. It is horrible and unrelenting. Not only is there no air and very humid the… Continue reading What do you do on days when there is no air??
Smoking on NHS sites- it is STILL happening!!
I know many of you will think I sound like a broken record particularly as I have written several blog posts around the issue of the smoking ban on NHS premises. The first of my posts was back in 2015 on April 2nd. written after legislation was passed by the Scottish Government to implement a… Continue reading Smoking on NHS sites- it is STILL happening!!
SoulKraft Wellbeing Radio Show 10.07.19
Last night I had a totally new experience. I was a guest on a radio show. I have done radio interviews before but they have never been in a radio studio with the headphones etc on so this was all a bit new and exciting! To listen to the show follow this link SoulKraft Wellbeing… Continue reading SoulKraft Wellbeing Radio Show 10.07.19
Branding!!!!
I am really excited to share with everyone my new logo and branding. I have never thought about branding myself for my involvement and advocacy work but while at HealtheVoices19 it became very clear that this was something I needed to do to become as effective as I could be. It was my chance that… Continue reading Branding!!!!
Looking back at #HealtheVoices19
The past few weeks have been really tough, Im not going to lie but there have been some very dark times and hard times. Although my lungs and breathing have been manageable it has been bad enough to limit what I am doing and I have had to increase my steroids again to get me… Continue reading Looking back at #HealtheVoices19
The gift that keeps on giving!!
Many on long term oral prednisolone will be familiar with the saying that it is the gift that keeps on giving. It is the one medication that gives those who are taking it life but also results in many secondary conditions resulting due to the side effects and the prolonged side effects. I have written… Continue reading The gift that keeps on giving!!
Pollution and its effect on my asthma
It is well known that pollution makes asthma worse. There has been a lot of information in the press about this and how there needs to be low emission zones in major cities to try and increase the air quality. Recently an inquest ruled that the death of a young girl from asthma was due… Continue reading Pollution and its effect on my asthma
SMC approves Benralizumab (Fasenra)
Today was a big day for many Scottish people living with severe asthma. Many of us live day to day taking medications that do not fully help relieve our asthma symptoms and keep our asthma under control. It can be very frustrating and scary to live day to day not knowing how you will be.… Continue reading SMC approves Benralizumab (Fasenra)
ANONYMOUS-ASTHMA 