I have had a Key Information Summary (KIS) on my notes for a number of years and until today I have always taken it for granted. For me it is something that has always been and I just assumed that it was something that everyone with a chronic health condition had. Today at an Asthma… Continue reading Key Information Summary for those chronic health
Tag: severe asthma
Pain Management Appointment
No one likes pain and I mean physical pain. We do what we can to limit ourselves from getting pain or alleviate the pain we feel. A pain word cloud with some of the terms I would use to describe my life with chronic pain (taken from google) I have lived with chronic pain related… Continue reading Pain Management Appointment
ICUsteps Webinar- Being a Younger Person in Intensive Care
Watch the webinar I took part in for ICUsteps. I spoke about my experience of being a young person in ICU.
Cochrane Consumer Champion
I am really proud to have become a Cochrane Consumer Champion. Without sounding cliche I never imagined "my journey" in patient and public involvement (PPI) with the Asthma UK Centre for Applied Research would take me to where I am now. What started as reviewing a few patient information sheets has led to being a… Continue reading Cochrane Consumer Champion
“I can only please one person at a time. Today I choose me”
I recently read a blog post by Sally Crowe, who wrote about how her mental health was impacted after going through cancer treatment. She was diagnosed with cancer related post traumatic stress (you can read the blog post here). Sally chose this image: “Gardening as a metaphor for ‘tending trauma’, and learning to live alongside… Continue reading “I can only please one person at a time. Today I choose me”
Finding your other path in life.
From a young age we all have our dreams and aspirations as to what we want to be or do when we grow up. Our childhood dreams often don't quite equate to the reality of life. When we grow up you think that being Superman is just as much a possibility as being a Dr.… Continue reading Finding your other path in life.
Feeling like the odd one out at ICU support group
How can you feel like the odd one out at an ICU support group? I have written before many times that due to my asthma I end up in ICU a lot. I have written about my time in ICU and what happened but I don't think I have written much about the psychological impact… Continue reading Feeling like the odd one out at ICU support group
Multi-million pound Asthma Health Technology Fund at Asthma UK
Asthma UK- Asthma Health Technology Fund You may have seen on either the Asthma UK British Lung Foundation website or LinkedIn that there has been the launch of a multi million pound fund available to support the development of asthma health technologies. This fund I believe is so important because asthma lags behind other long… Continue reading Multi-million pound Asthma Health Technology Fund at Asthma UK
Long COVID vs Post ICU Syndrome
Is Long Covid really a new condition? Or just a new name for a syndrome that has effected the thousands of ICU Survivors for years? Taken from Long Covid Website There is a huge amount in the press just now about a new condition that is developing as a result of COVID19. Long COVID seems… Continue reading Long COVID vs Post ICU Syndrome
Essentials for Good Asthma Management
Recently on social media I have become so aware that many with asthma do not have the essential tools they need to enable them to manage their asthma effectively and live a life where asthma does not impede their daily routine. 1. Personal Asthma Action Plan (PAAP) or action plan for short. This is essential… Continue reading Essentials for Good Asthma Management
ANONYMOUS-ASTHMA 