an insight into my life with severe asthma, advocacy, awareness & research
A fellow patient advocate that I follow on social media put up a very profound post yesterday that resonated with me so much. It said how you "can be in a room full of people and still feel lonely". It hit me so hard reading this as it is often exactly how I feel. I… Continue reading Feeling lonely in a room full of people
Pride month has come and gone now and I really didnt get involved in anything this year. Maybe next year. I didnt realise that the month of July focuses on Disability Pride, raising the awareness around various types of disability which can be seen in the flag. The disability pride flag like with many other… Continue reading (invisible) Disability Pride Month
This week is mental health awareness week. Mental health is still such a stigmatised topic often leaving people feeling weak, vulnerable and embarrassed, some even fear what might happen if they acknowledge that they may be struggling with their mental health. I hear so often that people with a physical health condition worry about opening… Continue reading Mental Health Awareness
Even though I have only been to one training session I have fallen in love with the sport of wheelchair rugby league and Edinburgh Giants. Being part of something again fills me with so much joy and hope. Even just writing this so far I feel buoyed up thinking that it is only 2 days… Continue reading Edinburgh Giants Wheelchair Rugby League
Chronic illness takes so much away from you. It can leave you unable to hold down a job and therefore no monthly income reliant on benefits but more than that it robs you of your ability to socialise. The catalyst for the post was a photo that came up on my TimeHop memories when I… Continue reading The value of volunteering when chronically ill.
"Disabled looks like me" campaign with Leonard Cheshire and Mimi Butlin is very close to my heart for a number of reasons. The first one is that the aim of the campaign is to breakdown disability stereotypes. One thing I used to get really upset and angry about is being judged because I didn't look how… Continue reading Disabled looks like me Campaign
With the new year fast approaching I like to reflect back on how the year has been and what I have achieved. Last years post can be found here . My thought for 2019 was: 2019 is going to be a great year, a year to focus on achieving the best health I can and enjoy… Continue reading 2019 the good, the bad & the ugly
I have been very lucky that despite my asthma I have been able to travel (mainly to attend conferences). I have travelled via a variety of different methods: train, plane and taxis. Thanks to the hidden disability lanyard I have been very fortunate in the treatment I have received in airports. I have also been… Continue reading What do you do when you have a bad or good travelling experience when you have a disability?
I have been back at work now on a phased return and it is going fairly well except for one part. When my chest feels tight I do find it a bit of a struggle to get from the car park to the hospital. The staff car park is the furthest out from the hospital… Continue reading Returning to work in a fog of smoke.
This is really just a post to get something off my chest. I am getting so irritated by people who say they can't work because their asthma is too severe. I understand that some can't work because of this and due to complications of medication such as osteoporosis. Recently I had someone message me about… Continue reading Work
ANONYMOUS-ASTHMA 