Today my youngest brother published an article for the Daily Record. Out of all my siblings he has probably seen me at my worst. He has been there when I have been in tears because registrars cant get an arterial blood gas and they are getting stroppy because I kept flinching when they hit the… Continue reading Making asthma visible
Tag: severe asthma
Recovery- its not easy and so frustrating!!
One thing I have become very aware of is how we adapt to recovery in different ways. This last hospital admission has really highlighted that to me as recovery has been far from straight forward and a totally new experience for me- even after getting my knee operated on was easier than this. Previously when… Continue reading Recovery- its not easy and so frustrating!!
We need to stop Mepolizumab
Under a month ago I was writing about how I had been a year on mepolizumab. The drug that I thought was going to be my wonder drug and make my asthma easy to control or so I thought. You can read the post here. Part of me wonders did I know deep down that… Continue reading We need to stop Mepolizumab
Severe asthma- family and friends misconceptions.
I was asked to write this blog post by Asthma UK as their report about severe and difficult asthma has just been published and the statistics are shocking. Asthma is not taken seriously or respected, some people don't take their medication as they are meant to for a variety of reasons but this can be… Continue reading Severe asthma- family and friends misconceptions.
What do you do on days when there is no air??
Today has been one of those days where it feels like there is no air. You are left gasping for breath just moving a few meters and even sitting still feels like you are trying to breathe through a pillow. It is horrible and unrelenting. Not only is there no air and very humid the… Continue reading What do you do on days when there is no air??
Smoking on NHS sites- it is STILL happening!!
I know many of you will think I sound like a broken record particularly as I have written several blog posts around the issue of the smoking ban on NHS premises. The first of my posts was back in 2015 on April 2nd. written after legislation was passed by the Scottish Government to implement a… Continue reading Smoking on NHS sites- it is STILL happening!!
Looking back at #HealtheVoices19
The past few weeks have been really tough, Im not going to lie but there have been some very dark times and hard times. Although my lungs and breathing have been manageable it has been bad enough to limit what I am doing and I have had to increase my steroids again to get me… Continue reading Looking back at #HealtheVoices19
SMC approves Benralizumab (Fasenra)
Today was a big day for many Scottish people living with severe asthma. Many of us live day to day taking medications that do not fully help relieve our asthma symptoms and keep our asthma under control. It can be very frustrating and scary to live day to day not knowing how you will be.… Continue reading SMC approves Benralizumab (Fasenra)
Feeling much better and more positive!!
Its now the end of the week and since my last post things have been a lot better. I must say the support I have received over this week from others who also have chronic health issues has been over whelming. It was both reassuring and shocking to read comments from people saying they could… Continue reading Feeling much better and more positive!!
#MentalHealthAwarenessWeek2019 Acceptance
In my first post for #MentalHealthAwarenessWeek2019 I looked at dealing with being in denial. Wether that denial be of your physical health or your mental health, I am sure it is something we have all done. Tried to brush things off and say I'm fine. But what does saying fine really mean. To me now… Continue reading #MentalHealthAwarenessWeek2019 Acceptance
ANONYMOUS-ASTHMA 