an insight into my life with severe asthma, advocacy, awareness & research
As we approach the first anniversary/ birthday of Edinburgh Giants Inclusive Sports Club I think how much has changed for me but also very aware of how close I was to not going. Before my first taster session with Edinburgh Giants Wheelchair Rugby League I was sitting trying to convince myself to get in my… Continue reading 365 days of finding myself again
Walking into my first practice I had no idea what to expect. My only experience of wheelchair rugby league before that practice in March was watching the Wheelchair Rugby League World Cup during summer 2022- and that was by chance as one of my old lacrosse teammates was a referee at the World Cup. That… Continue reading Sport is so much more than just sport. Reflecting on my first season with Edinburgh Giants
It is no secret that the past 22 months have been really hard but I never realised how hard it would be once I had had surgery. Healing is going really well. I cannot believe the job the plastic surgeons have done. They did need to take my umbilical and I do have a nice… Continue reading Accepting when you need some extra help.
This week is mental health awareness week. Mental health is still such a stigmatised topic often leaving people feeling weak, vulnerable and embarrassed, some even fear what might happen if they acknowledge that they may be struggling with their mental health. I hear so often that people with a physical health condition worry about opening… Continue reading Mental Health Awareness
Just now I feel like a swan in a pond. Everything looks ok on the outside but under the water it can be furiously paddling to stay a float. In January 2022 when I developed the urachal cyst never did I envision what has unfolded let alone still be battling 14 months later. I am… Continue reading Floundering a little
Today 10th October 2022 is World Mental Health Day. I was asked to give a brief talk during the event Living Well: Emotional Support Matters hosted by The Health and Social Care Alliance (Scotland). My talk was titled: Benefits of using your own experience to call for change. This blog post is roughly what I… Continue reading Mental Health Benefits From Using My Patient Voice
Last year (2021) I had so many plans for this year especially as my health seemed to be a bit more stable I was looking forward to getting out and about and just living life again but 2 weeks in January that all changed. I cannot believe we are now in October. Time has been… Continue reading 2022 is not my year
I am well aware I have neglected my blog and there have been no posts for sometime. I have sat down so many times to try and write but just nothing comes out. If I am honest I have been struggling a lot over the past 4-5 months. I feel lost in myself and couldn't… Continue reading Finding my Positive Mental Attitude
I recently read a blog post by Sally Crowe, who wrote about how her mental health was impacted after going through cancer treatment. She was diagnosed with cancer related post traumatic stress (you can read the blog post here). Sally chose this image: “Gardening as a metaphor for ‘tending trauma’, and learning to live alongside… Continue reading “I can only please one person at a time. Today I choose me”
Is Long Covid really a new condition? Or just a new name for a syndrome that has effected the thousands of ICU Survivors for years? Taken from Long Covid Website There is a huge amount in the press just now about a new condition that is developing as a result of COVID19. Long COVID seems… Continue reading Long COVID vs Post ICU Syndrome
ANONYMOUS-ASTHMA 