It has been a busy few weeks with a number of trips down to London. Last year when I had a few trips to London there was a clear deterioration in my asthma when I was there. My peak flow dropped substantially and I was constantly feeling tight, wheezy and just couldn't get my breath… Continue reading Getting over the stigma of wearing a mask in public!
Tag: asthma
AUKCAR ASM NRS Talk
It is hard to believe that I have been involved in the Asthma UK Centre for Applied Research for 5 years now. Time has gone so quickly. I have had some amazing experiences as a result fo being involved, met some wonderful people and made friendships that I hope will last for a long time… Continue reading AUKCAR ASM NRS Talk
Asthma in the news
Asthma has been in the news a lot recently, most of this has been reports on how awful the asthma care is for those with asthma in the UK. It is not all negative and there has been the odd positive bit of reporting such as new drugs being developed or gaining approval for use… Continue reading Asthma in the news
The uniform that saves me, is it drowning me at the same time?
Since my attack at the end of November/ December I have really struggled mentally and physically. The initial recovery was good, my lung function returned to my normal fairly quickly and my energy stores were up, I was able to get about and get on with my daily routine without much limitation. Reducing steroids was… Continue reading The uniform that saves me, is it drowning me at the same time?
The NHS Long Term Plan
No one can have missed the news recently about the NHS Long Term Plan for NHS England. Even those of us not living in England can't miss it!!! I know I live in Scotland so it does not impact me directly but I am pretty sure the Scottish Government will take on a lot of… Continue reading The NHS Long Term Plan
It’s ok to not be ok.
This past week has been really tough. Asthma is one of those conditions that is on a spectrum. Going from those with the mildest of asthma to those with the most severe and life threatening asthma you get everyone across the board and you can not pick out the one person with mild and the… Continue reading It’s ok to not be ok.
Trauma of ICU
Finally I am able to sit down without getting upset or terrifying myself about my latest hospital admission specifically experience in ICU. The photo below may not look like much and you may think its a window and building but this is what has caused me to much trauma. Before anyone reads on please note… Continue reading Trauma of ICU
The Verdict!!
I have been fairly quiet recently mainly because I was terrified. I have had 3 doses of Mepolizumab and was due to attend clinic and see my consultant for the verdict and find out if I am staying on it or not. The good news is that I am staying on it for now. Clinic… Continue reading The Verdict!!
2nd dose of Mepolizumab in the bag
Thats the second dose of mepolizumab done and dusted. Now to wait till next month for my next injection next month. So many people have been asking me how I feel and if the new drug is helping or making a difference, or ask me when I will start noticing the benefits. Its really hard… Continue reading 2nd dose of Mepolizumab in the bag
Chronic Pain with Chronic Illness
I get my medication each week in a dosette box made up by my local pharmacist. I take so many medications that when I am not well I find it hard to work out what I have taken and what I still need to take. I now don't need to think about what I take,… Continue reading Chronic Pain with Chronic Illness
ANONYMOUS-ASTHMA 