I started writing this on Wednesday 9th October as I sat in the waiting room having checked in to clinic. I had so many expectations from clinic and pinned so much on it yet left feeling deflated. "Sitting in clinic with butterflies flying around my stomach. This is my first clinic appointment with my consultant… Continue reading Post ICU respiratory clinic
Blog Posts
Writing: planned vs spontaneous
This is a draft of a blog post that I started a wee while ago and never posted it. I thought I would post it now. When writing blog posts I have a few different types, I have the updates particularly if I have been to an out patient appointment or something. Then I have… Continue reading Writing: planned vs spontaneous
Struggling to stay positive
After being seen in neurology I felt kind of positive. I was excited because I was going to be part of a trial for the type of nerve injury I have. I have just received the clinic letter which is eye opening and reading the findings just makes it feel so much more complex. It… Continue reading Struggling to stay positive
DCN: Department of Clinical Neurology
Last week I was in Manchester at the NHS Expo. On the train my phone went and I saw it was the hospital calling- all calls that come from them show up as the same number no matter the department. Of course I just assumed it was respiratory because who else would be calling me.… Continue reading DCN: Department of Clinical Neurology
The Implications of Brexit on medication supplies
I think so far I have managed not to mention the B word on my blog. I am not one that is in to politics and after this fiasco I am completely and utterly fed up with it. One thing over the last few weeks I have noticed there has been more concern over medication… Continue reading The Implications of Brexit on medication supplies
Recovery- its not easy and so frustrating!!
One thing I have become very aware of is how we adapt to recovery in different ways. This last hospital admission has really highlighted that to me as recovery has been far from straight forward and a totally new experience for me- even after getting my knee operated on was easier than this. Previously when… Continue reading Recovery- its not easy and so frustrating!!
We need to stop Mepolizumab
Under a month ago I was writing about how I had been a year on mepolizumab. The drug that I thought was going to be my wonder drug and make my asthma easy to control or so I thought. You can read the post here. Part of me wonders did I know deep down that… Continue reading We need to stop Mepolizumab
Severe asthma- family and friends misconceptions.
I was asked to write this blog post by Asthma UK as their report about severe and difficult asthma has just been published and the statistics are shocking. Asthma is not taken seriously or respected, some people don't take their medication as they are meant to for a variety of reasons but this can be… Continue reading Severe asthma- family and friends misconceptions.
Accepting where I am now (but its not where I want to be)
I caught site of my shadow today when I was out walking with Ghillie down at Cramond and had to stop and do a double take. I was thinking it cant really be me I was looking down at. I was looking down at the shadow of someone who should be triple my age. Hunched… Continue reading Accepting where I am now (but its not where I want to be)
No-one is immune from a near fatal asthma attack.
Once again asthma has been in the press for all the wrong reasons. Despite the National Review of Asthma Deaths (NRAD) in 2014 it appears nothing has got much better. It was announced that asthma deaths in England and Wales (Scotland was not mentioned) are at their highest in over a decade. Over the years… Continue reading No-one is immune from a near fatal asthma attack.
ANONYMOUS-ASTHMA 