Blog Posts

The Verdict!!

I have been fairly quiet recently mainly because I was terrified. I have had 3 doses of Mepolizumab and was due to attend clinic and see my consultant for the verdict and find out if I am staying on it or not. The good news is that I am staying on it for now. Clinic… Continue reading The Verdict!!

Passive smoking……what does it mean???

apart from death? I cannot count the number of posts I have done about smoking, passive smoking, the smoking ban and how it effects my lungs and the lungs of many others like me. It really hit me the other day after parking my car in the carpark at work and walking the 200m to… Continue reading Passive smoking……what does it mean???

Patient Centricity

For the past 5/6 years I have been given some fantastic opportunities and invited to be part of a number of very special events and a few events which are still to come. Yesterday was one of those events. Rewind 6 years and I would never even have thought I would be at ease public… Continue reading Patient Centricity

2nd dose of Mepolizumab in the bag

Thats the second dose of mepolizumab done and dusted. Now to wait till next month for my next injection next month. So many people have been asking me how I feel and if the new drug is helping or making a difference, or ask me when I will start noticing the benefits. Its really hard… Continue reading 2nd dose of Mepolizumab in the bag

Chronic Pain with Chronic Illness

I get my medication each week in a dosette box made up by my local pharmacist. I take so many medications that when I am not well I find it hard to work out what I have taken and what I still need to take. I now don't need to think about what I take,… Continue reading Chronic Pain with Chronic Illness

When is it going to start working??

One thing I have found since starting mepolizumab is I am constantly questioning myself and am almost preoccupied thinking about what results I may see and how my asthma will improve. Its hard because with this drug unlike others there is no knowing when you will start getting the benefits and if you will get… Continue reading When is it going to start working??

New drugs, new start?

I haven't written in ages and I apologise for that but I really did not know what to write and how to write without getting myself angry and upset as I feel the last 8 years have just been a total waste. I wrote a while back about changing consultant and hospital because I was… Continue reading New drugs, new start?

New horizons- not knowing how to feel!

In March/April for me my asthma care hit a wall and I could no longer continue as I  was. Despite my consultant being one of the best in the field of difficult to control asthma I was getting no where, I was feeling lost, totally out of control and no idea what I was doing… Continue reading New horizons- not knowing how to feel!