I was reading another blog of someone I know who also suffers from Brittle Asthma which has been so badly controlled by Drs that she has a lot of lung damage as a result requiring oxygen 24/7 now. I found myself in tears reading the posts something which I don't often find. Its not that… Continue reading Harsh realities hitting hard.
Anyone with asthma or even any long term condition wants a cure to be found for their condition. A cure would mean so much, less medication, no hospital appointments, less time miss off work, ability to get travel insurance, do the work you want, play the sport you want, sleep a full night, not feel… Continue reading A cure would be great but control would be better.
Part of having Brittle Asthma means quite a strict daily medication regime but also the constant quest for the magic inhaler, pill or nebuliser which might just be life changing or not even life changing but give you that bit more freedom and better quality of life. A common theme between brittle asthmatics when first… Continue reading What I take and what it all does!
I remember the first time I was given a nebuliser to have at home. 11 years ago the nurses produced this machine which at first glance I thought was a toasted sandwich maker. I was immediately confused but this didnt last long. They soon opened it all up and all made sense. I wasn't expecting… Continue reading Nebulisers at home
Its hard to stay motivated to get yourself well when you hit a brick wall each time. Being out of hospital for just under two weeks now I would expect to be breathing a bit better and able to get out and about more. I am struggling with my chest and the smallest of things… Continue reading Trying to stay motivated.
During my last hospital admission I was very apprehensive about seeing my old consultant. I had recently changed consultant out of frustration and fear of losing my job. Just reducing prednisilone and seeing how I go was not working for me when all I wanted was to get better. My current consultant is now based… Continue reading What happens when there is nothing else?
Its a week since I was discharged from hospital and I am just fed up. It is getting harder and harder to bounce back from attacks and admissions. I used to pop back up after a day or so once home. Its been 7 days now. I feel slightly better than I did when I… Continue reading Stop the bus I want to get off.
Recently in a lot of groups, on Twitter, Facebook and Instagram there have been various projects or statement about not being your illness/ condition and not letting it define you. So many people have been jumping on this and saying how they are not their condition, or that their condition is part of them but… Continue reading Are you your illness/ condition?
After being moved from A and E to the assessment ward and then onto the respiratory ward was not plain sailing. I felt like I was just being a pain and a burden to the nurses. I was not allowed of of bed so had to ask for absolutely everything. Absolutely everything exhausted me as… Continue reading Reflecting back
Just under 2 weeks ago I had another pretty serious asthma attack which ended up with me being admitted to hospital for over a week. Over the years I have had loads of asthma attacks and all of varying degrees, different situations and surroundings yet this past one is one I am finding the most… Continue reading It never gets easier!