Our Patient and Public Involvement (PPI) Forum lead gave a short course on what PPI is and how to use it in research as well as the benefits of using PPI which is often a forgotten entity in the research process. I was observing this course and chipping in periodically along with one of the… Continue reading Patient and Public Involvement aka PPI
Someone I follow on Instagram summed up exactly how I feel my asthma has made me. I used to be almost the opposite of myself. I always want to think that chronic illness does not define who I am but then this is not true at all. I am my chronic illness and I have… Continue reading The isolation of chronic illness
Today is Burns Night. So in true Scottish tradition I will be having haggis for my tea. I love haggis but only ever eat it on Burns night. I do love some of Burns poetry but a lot of it I can understand as it is practically in anther language. But here is his address… Continue reading Burns Night
It was lovely tonight to have some normality. You may think it very odd to be writing a post about being out on saturday night but it was a big deal for me. I still ended up in bed by quarter past ten but have been out since 6pm. I feel really good that I… Continue reading Out on a saturday night
Yesterday I saw my consultant in clinic. His secretary actually called in the morning to cancel it as Consultant wanted to have a joint appointment in a few weeks to finalise the emergency care plan that was being written should I end up in hospital. However recently I have not been really really unwell but… Continue reading Great Expectations
Continuing with the guest blogs this next one comes from Wendy. Wendy too suffers from more severe asthma aka Brittle asthma. I got to know Wendy I think initially through AUK perhaps and latterly on asthma groups. I think Wendy's blog was one of the first blogs I started reading many many years ago and… Continue reading Guest Blog from Wendy
This is what I started to struggle with. I found I was making errors taking my tablets. I would take extra of some and not enough of others or vice versa. This caused me to get very ill when I became toxic as I was out with the therapeutic level for one of my drugs.… Continue reading When the drugs all get to much and mistakes happen.
Today has been one of those days where bits and pieces happened and the end result should make a huge difference. Today was a particularly bad day breathing wise. I knew I was starting late for work as I was due time back but nebbing hourly from 5am was not the way I planned to… Continue reading Small steps will make big changes.
A friend recently wrote a post about breaching a hospital time and therefore became one of the statistics. I have been in this situation to and it was for exactly the same reason why I breached a hospital target time and reduced their good statistics!!! The press focus so much on hospitals missing targets and… Continue reading Hospital Targets
One of the big issues I found I faced since my asthma became very uncontrolled and needing more potent medications is weight gain. I do struggle with the concept that the prednisilone I need to control my asthma is in turn destroying my body. I recently watched the documentary by Katie Hopkins where she basically… Continue reading Weight Gain but not your fault.